Archive for lymphoma

I remember you

Posted in cancer, Mom with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , on May 9, 2015 by runmyssierun

It’s still very awkward for me on holidays. Especially Mother’s Day without my mom and Sissy (who helped raise me)  and the only other person in this world who would know what I feel… my baby brother.

I was watching GMA (Good Morning America) yesterday and saw Garth Brooks surprise an unsuspecting mom with a personal appearance and sang a song to her that touched my heart..

I know I question a lot of what God puts me into… and I know I shouldn’t because God sure put me into the arms of the most perfect mother ever. He knows what He’s doing. I hope I’ve become the mom that she was to me for my boys.

My son and I at the very first Little Heroes Prom held by the Leukemia and Lymphoma Society in the Rio Grande Valley at IMAS.

My son and I at the very first Little Heroes Prom held by the Leukemia and Lymphoma Society in the Rio Grande Valley at IMAS.

Last night, I was able to get dressed up and share an evening with my youngest son at the Little Heroes Prom held at the International Museum of Arts & Sciences. And although the event was designed for the children in the area who have or have had cancer, you couldn’t help but see the mothers of each child there beam with pride as their beautiful/handsome child danced to Pharrell’s Happy or Taylor Swift’s Shake it off.

And as I looked beside me and gazed upon the child I helped create, I couldn’t help but get a little choked up realizing that this was the first Mother’s Day that I would be without my eldest child and simply stayed quiet as the women around me at the table asked each other how they would be celebrating their weekend as moms.

I won’t be doing anything “special”. But I’ll be feeling special.

Happy Mother’s Day to everyone who helped mold a child to become a better person.

My Momma and I celebrating me becoming a mother.

My Momma and I celebrating me becoming a mother.

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TEAM SARAH

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , on January 16, 2015 by runmyssierun

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I met Sarah shortly after I ran my first marathon in the summer of 2012. She is like a lot of other little girls and being the mother of two boys, and always wanted a little princess of my own, I gravitated towards her naturally.

Whoa… wait a minute. It must be more than that. Way more than that. Because everyone always gravitates towards her naturally. You can’t help but love this girl the moment you get that first giggle from her!!! Sarah loves to play and run and jump and race and challenge you on the monkey bars. She gives big bear hugs and laughs from deep within her belly. Sarah is a special needs child, but you would never know it. She’s special because she needs help fighting cancer.

At this time, if you’re anything like me… you’d skip all this jargon and skim right over to the pictures I posted of her and think to yourself: Are you kidding me? This little girl has cancer? But she’s so happy and looks so healthy!!! No way!!!

Si guey.

And here’s what really gets me… she and her mother, Anita, are at almost every single one of my practices and events ever since that first meeting in the park. If you’ve read my blog before or followed any of my social media accounts and have seen pictures of me running along the 2nd Street trail, swimming at a pond, lake or video at the Bay on South Padre Island or cycling along the back roads in Mission, chances are that all that footage was taken by Sarah’s mom. Now think back… that’s a whole lot of footage documented!!! Yep! And I can say with all my heart, this woman is probably one of THE most devoted mothers I have EVER met in my life… and I’ve known a lot of great moms!!!

Ever since I got into my health and fitness kick, I’ve heard so many people say,”I would go run (or bike or swim) with you but I just don’t have the time because I have (insert excuse of your choice)”.  I always smile and never push, but Anita always comes to mind when I hear people say things like this.

Anita has a child fighting cancer. A NORMAL day of a mother is hectic enough, add to this being a mother of a special needs child with cancer. Now pile on 20-some triathletes who do various workouts all throughout the day all over the county and events all over the State of Texas. Now add on about 50 runners with various distance marathons trampling all over everywhere… and she’s always there.. WITH A SMILE ON HER FACE…and a camera to record YOUR smile.

In February of last year, while at a “mission moment” run at Bill Schupp Park, Anita announced that Sarah was cancer free. I wrote about it in my blog here: https://runmyssierun.com/2014/02/16/blurry/

Her mother, Anita, took center stage for our mission moment. She announced that Sarah had been declared officially in remission earlier this week.

Anita was the first person I ran to when I embarrassingly DNF’d at CapTex last year. I wrote about it here: https://runmyssierun.com/2014/05/29/capital-of-texas-triathlon/

Ashamed, coughing and crying, I ran straight to Anita. I wrapped my arms around her, dug my head into her shoulder and cried out “I didn’t make it. I didn’t make it”

It should be of no surprise that when Team in Training decided to create a TEAM SARAH and asked if would like to be a part of it, a split second hadn’t passed before “YES” blurted out. How could I refuse the adorable little girl who steals all my pickles from my SAG kit?

This is Sarah Morales. She has been my honored hero for several seasons and now I have the honor of being on HER team.

Would you please be on her team, too? We are raising $100,000.00 in her honor so that other children like her can be healed and get assistance. Please give what you can here on this link:  http://pages.teamintraining.org/sctx/nbhtri15/mcardenasb

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sweet sarah 1 sweet sarah 2

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I met a woman named Mom – This is her story

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , on October 8, 2014 by runmyssierun

Last week, I met a woman and her son at a luncheon… her name is MOM. This is her story:

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Evan's Mom told us her story and what Vannie Cook Cancer Clinic did for Evan and her family. As she spoke, her voiced cracked a few times and tears rolled down her face... Evan stood by her patting her back trying to comfort her. These are the stories, these are the families that YOU help. Please read her speech and see the other children of Vannie Cook Cancer Clinic at the end of this post.

Evan’s Mom told us her story and what Vannie Cook Cancer Clinic did for Evan and her family. As she spoke, her voiced cracked a few times and tears rolled down her face… Evan stood by her patting her back trying to comfort her. These are the stories, these are the families that YOU help. Please read her speech and see the other children of Vannie Cook Cancer Clinic at the end of this post.

Mom that’s my name I don’t have any other name but mom. I remember the first time hearing doctors and nurses calling me mom, it seemed odd to me, having grown adults calling me mom…But that’s who I am …Mom.

            In November of 2010, around Thanksgiving time, my son Evan got the flu.  We gave him Tamiflu and after five days when he was still sick, I took him back to his pediatrician.  The pediatrician told me we had to go right away to the hospital. Evan needed to be admitted into ICU …this sense of urgency or fear a sort of internal siren went off!  I remember I wanted to run… I wanted to grab Evan and leave …drive far away and never look back. I was scared …The “mom” inside me knew there was something wrong.

The next morning I met a doctor who said, mom I’m Dr. Bernini, as he introduced himself …. By that evening the same doctor would say the words that would shatter my world as I knew it: MOM YOUR SON HAS LEUKEMIA.

Cancer? leukemia?   The word paralyzed me, I heard it but was it a dream ..more like a nightmare? I recall I couldn’t feel my legs …I was weak… and before I knew it I was sitting. You can’t even see what’s going on around you because your eyes are blurred from the tears that won’t stop coming … Family members, they mean well, are researching … And emailing you information on St. Jude and other treatment options. You are trying to be a mom and just comfort your son but you have to get him well too … Fast.  Between the blurred vision, the advice coming from every direction, and the feeling of being paralyzed …the only thing I do remember .. Is feeling Dr. Bernini grab my hand and hearing him say, Mom I promise to do all that I can to save your sons life.

I have 3 children 2 daughters who are now 10 & 8 and my son Evan 5 yrs old. Cancer is a beast and doesn’t just pick on one he picks on the entire family. His sisters quickly saw the change of Evan’s once terrible two’s personality become more like that of an 80 year old mans. Our daughter’s needed my husband and I …and we all needed each other more than ever.

Evan battled leukemia  for over 3 years … He was bald, had surgeries, port infections, fevers, hospital ICU sick stays, side effects from chemo, went bald …Grew hair … threw up …a lot …slept …a lot, slept none – on steroids … Got swollen, gained weight, then got much too thin  …. None of the things I imagined for my only son … Nothing a mom would ever imagine for their child. Cancer is a nightmare for the entire family …and I would be lying if I said I never had nightmares of Dr. Bernini calling me to tell me Evan’s counts are off. It lurks… and haunts our family. So as a mom one can only imagine how helpless Cancer can make you feel.

            To be in McAllen not so far from where we live in Harlingen, has been such a blessing for that reason. If I didn’t have Vannie Cook Clinic, I don’t know how I would have dealt with still being a mom of 3 and a wife.  Life keeps coming at you … During the almost 4 years of treatment Evan had, there are birthdays, deaths in the family, siblings with colds, car batteries that die and of course bills to be paid. LIFE.  Imagine being behind on your mortgage then finding out your AC is shot, its 92 degrees in your house, and the fridge decides to go out too …your house smells of spoiled food …. But the worst part your son has a 102 fever and pneumonia and needs to go to the hospital. It’s not a doctor’s visit it’s a hospital stay when you have Cancer … And can be life or death. If you didn’t feel completely helpless during this entire time well now you feel as if life is picking on you And U want to just scream out …what more do you want ?!  .  That day I wanted to throw my hands in the air and just give up -I felt guilt knowing my son Evan never gives up….I called and talked to a nurse at Vannie cook, and then confided in the social worker, Yadhira … Some days she’s the only person that can get anything out of me because I’m just so drained ….  Yadhira, the social worker was able to find resources that helped us pay for a new motor that fixed our AC and located financial assistance that helped us make a payment to our mortgage company within days.  Evan stayed in the hospital for 4 days and thanks to the clinic’s social worker, I was able to keep focus on just him. It was our saving grace … And believe me when I say there’s no way to get through this long journey without that grace.

I remember the first time I walked into The Vannie Cook Clinic and I looked around. There were bald children and nurses and it seemed like a friendly atmosphere but I remember thinking … We don’t belong here.  My son doesn’t belong here.  Today I stand here and tell you that I am Mom …but in a matter of days that changed …somewhat. …I am a mom with a son who has/had cancer. As you look around this room… really look at the moms, the dads… who have a son or daughter who has cancer … We were once like everyone else.

My name is Mom and my family is part of The Vannie Cook Clinic…my son belongs at The Vannie Cook Clinic, it’s the place where we feel safe ….  God bless Dr. Bernini, Dr. Erana, Dr. Ramirez, Ruthann and all the nurses and staff… God bless you all for being here … And God bless The Vannie Cook Clinic.

If you would like to help and donate to the Vannie Cook Cancer Clinic, please follow the link here: DONATE 

To learn more about the Vannie Cook Cancer Clinic, please follow this link: www.vanniecookchildrensclinic.org

Mom and Me I admire her bravery and hope that more can be done so that no mother ever has to face this ever again.

Mom and Me
I admire her bravery and hope that more can be done so that no mother ever has to face this ever again.

Celebration of Heroes Fashion Show

The children of VCCC modeled fashions from Zoodles in McAllen. At the end of the show, Zoodles announced that each of the children could keep the clothes they were styled in. I wish you could have seen their faces!!! They were so excited.

These are the children:

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Workout Envy – my newest phenomenon

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , on September 22, 2014 by runmyssierun

All my life I’ve had nicknames. As a child, I lived across the street from my grandmother and great Aunt Lucille. Neither houses had air conditioning and our windows were always open so I could clearly hear them yell out to me “Missinga” (prounounced Mee-seen-gah) or “Queena” if they wanted me to go over and do something for them. In high school, my best friend would tease me with her nickname for me “Missy Lu” and my dance team and coach called me “Myssie Card” all short references of my real name. After I won Miss Edinburg my Senior Year in High School, I was called “Miss Edinburg” a lot but the reference quickly changed to Miss Myssie because I was in a different pageant every semester.

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But yesterday at Starbucks, someone said “Hey, that’s Healthy Myssie!”

I was so taken back and honored. I’ve become Healthy Myssie!!!! Someone actually called me HEALTHY Myssie! I must have looked like the worlds biggest hee-haw being that I was oddly speechless after that.

It was three years ago this month that Sissy’s last wish was for me to take up running and become healthy so that I can better manage the upcoming stress she saw in my future and live a longer, stronger happier life than the family members I had been caring for that year. So much has happened since then and I credit her for saving my life and changing my lifestyle forever.

I had never run a mile before in my life and now, as I sit here typing at my desk… I look over at my medal holder hanging on the wall beside me and honestly don’t have enough math skills, fingers and toes to total the miles I have run in these three short, quick years. I have learned how to swim since then and have found a new passion – cycling – all because of her… my Sissy.


As I was in the gym today, I came across an all together new feeling. I was on the treadmill doing a short little warm up and felt sweat begin to drip down my neck and body. I was planning to only do a short little run and focus on leg strength training to help cure my noassitol disease but couldn’t help feeling… “I wonder how much I can run today?” I had already told the spouse man that it would be a short workout so that he could go to the ranch for some bird hunting today so regardless of feeling like I could run forever, I knew I was limited in time. The sparkle of the pool’s reflection outside caught my eye. “Oh how I wish I could go jump in the pool now and swim forever!”

Wait.. what??? Who have I become?

I skimmed through the posts of the Run Walk or Crawl girls and saw all their incredible long run posts that we were all congratulating them on. “I want to do a long run, too!”

My facebook feed used to be filled with pictures of droopy-eyed friends acting goofy and holding up half empty beer bottles and red solo cups hanging on to each other for balance… and now it’s filled with friends holding up finisher medals, podium trophies, covered in mud, jumping fires, open water swims, cycling over mountains, etc… and I immediately look for an event calendar to see if I can do the next one with them!!!

Oh my lord! I have workout envy! I want to do it all and have all day to do it!

Here I was in the middle of my own workout that was carefully planned out and calendared to fit the upcoming events I had chosen to do… and I find myself wanting to do something else and so much more… just because I can.

Well now, isn’t that a great problem to have?

I can tell I’ve begun to change in some wonderful ways. Although I only put in a small workout today, it helped put me in a GREAT mood the rest of the day. I miss waking up early in the morning and doing my workouts with the team but I understand that hubby doesn’t appreciate it much anymore having me out on weekend mornings and not doing anything on weekend nights. My workouts aren’t just a social sacrifice for me, but for him as well. Making fitness a lifestyle is only successful if the whole family supports it and becomes a part of it, too. Setting my day first with a workout seems to put everything in a calmer perspective for me. It makes difficult situations easier to deal with. Having to wait until the Cowboys play has put a damper on my workouts… and my days. But, eh, I’ll take it. Just a few more months.. I can deal.

Sissy

Sissy


September 23rd marks the third anniversary for Sissy. That’s two days from now.

Not quite sure what to do.

Your suggestions are welcomed. How would YOU honor the woman who saved your life?

Don’t Stop Believing

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , on August 22, 2014 by runmyssierun

So remember that busy week I was telling you about a few posts ago??? Yep, it happened!

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Fabulous fixie with orange wheels donated by Wally's Bike Shop for our auction!!!

Fabulous fixie with orange wheels donated by Wally’s Bike Shop for our auction!!!

We hosted a fabulous mixer at Cimarron Country Club last Thursday. Auctioned off a wicked awesome fixie donated by my trusty and generous bicycle guru, Wally’s Bike Shop, and some ticket concerts to a great show coming up and honored a great local gastro doctor who jumped on board to help with the cause.  RGV CAP board members even jumped in on the ALS Ice Bucket Challenge!!!

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Friday was packet pick up.

And Saturday was our RGV CAP 10k race!!!

http://pics.mvevents.com/

Monies generated from these events go to Rio Grande Valley residents who are at high risk of colon cancer and are unable to afford a colonoscopy. Since colon cancer is one of the MOST curable cancers if found in it’s early stages, many understand and empathize with the passion we have to this cause and supported it with all that they could. I’m so grateful for the amount of support we have received!!!!

Oh how I wish Momma would have found her cancer in an earlier stage.

But I know.. I know..

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This was peak week for my training and I’m pretty pleased. I’ve swam more than I ever have and feel very comfortable at the pace that I’m at and my form seems to be improving each time I practice – thanks to Coach W’s drills every Wednesday.  I still wish I didn’t have my crazy reactions in the ocean water but am reassured that Town Lake in Austin won’t make me swell up like that with the ictchies or wheezies. My running was probably the sport that I needed the MOST improvement in. It sure is humbling to see me go from where I was to where I am now. But again, I’m not going to beat myself up about it. So long as I am moving forward, I know I’ll get there. I’m feeling healthy and strong and mentally… I’ve put that sarcastic, doubting voice in my head securely in place… with some duct tape 😉

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I sure miss riding my bike as often as I did. But I had to work on my weaknesses. Cycling to me is FUN so I know that on game day, I won’t be riding with my legs, I’ll be riding with my heart. As I should be.

Getting over my personal disappointment on my swim at CapTexTri will be an adventure. But I’m confident I’ll beat my demons. Lets watch and see!!! My story is yet unwritten and only me and my coach have my goals.

Self improvement has lessons every day and on various subjects.

I am a forever student.

I am still quite a distance from my finish line.

 

 

 

Send off Mission Moment

Posted in Uncategorized with tags , , , , , , , , , , , , , , on May 22, 2014 by runmyssierun

So it’s send off time. This is when the team gets all the instructions for hotel stay, meetings, check ins, and everything else for game day…. CapTexTri.

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We all meet at Cordon’s. It’s a beautiful day and we’re all outside.. and it’s mission moment. This is the third time I’ve been asked to do a mission moment in my history of Team in Training. The following is what I said:

 

March 21, 2012

quit (verb) – to stop trying, struggling, or the like; accept or acknowledge defeat.

These past two weeks were emotionally difficult for me. I saw my usually vivacious, super-power infused mother weak, frail and suffering. Whatever was in this last treatment knocked everything out of her. I could get my thumb and touch it with my index finger and her leg could fit right through it. Her hair has now fallen off and her normally wrinkle free olive skin has an odd grayish/yellow tint to it.

I was worried – really worried – for the first time ever. So I spent the weekend with her and then called her main doctor at MD Anderson. After questioning me about her symptoms, we agreed that it was best for her to return to Houston for a week so he could monitor her better under medical staff care. I was not comforted by his concern.

She grabbed my hand and squeezed it with all her might and looked me straight in the eyes and said “I’m worried about Myssie. She has so much on her plate right now. Can you keep an eye on her and help out?”

We had been warned that her memory functions may be lost as a result of her last radiation treatment. I don’t know who she thought I was at the time but I was glad that I had the strength and courage not to have the shock and sadness show in my reaction to her as I replied with “I will Momma, I will. Don’t you worry. I’ll take good care of her.”

That was Sunday about noon time. They drove to MD Anderson on Sunday afternoon and met with her doctor on Monday morning.

I was sitting at my desk working on a proposal for a client of mine just shortly before lunch. I had a ton of meetings scheduled and needed tons more to make my quota. The stress was insane. That’s when I got the phone call from Dad.

“Myssie, can you talk?”

“Yes Daddy. What did the doctor say?”

“It’s not good. There’s nothing more that they can do. We’re coming home…. right now. They’ve released her to hospice. We’ll be home about 6:30.”

There must have been at least a year of silence after that. I was crushed.

Why?

I was asked just days ago by my Team in Training coach why I was running. Why I was putting my body through this? What was I doing this for?

As silly as it may sound, part of me was hoping that God would see how hard I was trying. That He would see that I was willing to take the pain away from her and volunteer it onto me in order to not have her suffer any more. I wanted that pain and suffering to quit. I wanted cancer to quit. Because I wasn’t going to allow myself to quit. I would never quit.

Well, that was until I heard those words from my dad.

I did want to quit. I wanted so badly to throw in the towel and give up. Why should I run? Really, why should I? It’s not like running a marathon will produce a cure for my mom as I cross the finish line. What am I doing? I should just quit.

I thought long and hard about how to tell friends and family about the news. I wanted to be angry and blame everything from preservatives to toxic land for her suffering. But I am so glad I didn’t. I took a deep breath and took a step back and told myself now is how I must example the way she brought me up.

The following is what I posted to friends and family on my facebook wall:

Science and medicine has done all that it possibly can. Momma has shown incredible strength and faith through these tough 6-plus years. The choice to discontinue treatment does not mean that she has quit. It means that she is strong enough to accept God’s will and live the remainder of her life with her family and friends at home instead of hotel rooms and hospitals. I am so very proud of her bravery, so very thankful to her miraculous team of doctors and so very grateful for everyone’s prayers, kind gestures and help. Keep them coming.

See, my mother is not a quitter. Cancer will likely beat her body. But it won’t beat her. She’ll never quit. Her legacy will live on and continue to teach us, to love us and to give unto others. She never quit. And neither will I.

 

 

The last two and a half years I’ve spent running, swimming and biking alongside the most courageous, selfless and kind athletes in the world. Many of them were going through cancer treatment, had recently successfully beat cancer or were friends and/or family members of those who had lost their battle to cancer. Many of them. Too many of them. Way too many of them.

Two weeks ago, I walked 9.7 miles in and around our Nation’s Capitol pleading with our political leaders to help make cancer treatment more accessible and more affordable for cancer patients, MS patients, Alzheimer’s patients, Parkinson’s patients … and more. I was not alone there either. I begged alongside a TV celebrity, Ethan Zohn, the winner of the TV reality show Survivor, who really was a cancer survivor. But after he won the show, he found out that cancer stuck once again. He shared with me his completely candid and genuine emotions.

The whole world thought he was this tough guy, strong enough to beat cancer, strong enough to win in the brutal jungles of Survivor. He was a pillar of hope for those who were currently battling cancer. And suddenly he was scared again like a little boy. What was his fear? If he went public with his disease and DIDN’T win, what would that do to their hope?

Thankfully, he did go public and he did beat cancer a second time and he is still scared he’ll have to fight it again a third time. That fear looms over the head of cancer survivors all the time.  Until we find a cure, that fear will always be there… for every single one of us. None of us are immune.

As he spoke to us, everyone began to weep. Oncology doctors, nurses and social workers, LLS volunteers, family members and loved ones of those lost and survivors, like Ethan, all connected.

And that’s when I was asked “Are YOU a survivor?” and the woman next to me put her arm around me and replied “She lost all of her family except for her father to cancer in one year. She is a survivor. She is all that is left.”

Truth is, we are all survivors right now. We are all living with cancer. Because cancer doesn’t affect just the patient. It affects us all.  And until we find a cure for cancer, we have no choice but to keep living, keep fighting, keep running… keep TRIing.

#ideclare4lls – the squeaky voiced lobbyist from TEXAS

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , on May 9, 2014 by runmyssierun

I spent the last few days in Washington, D.C. with some pretty phenomenal cancer fighters – we made our voices heard on the Hill.  Y’all know that when someone else says it better than I do… I just let them. This post is taken from LLS Interim CEO Dr. Lou DeGennaro’s blog.

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With almost 400 cancer fighters declaring the end of cancer… I figured I would help you find me… I’m at the VERY top of the group. You’ll see three heads (I’ll be the third head) and mine is (if you imagine a clock, I’d be right at the 12) right smack at the top center

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After a group photo on the steps of Capitol Hill, where nearly 400-strong raised our hands and declared Cancer Ends With Me, (#Ideclare4LLS) we all – patients, survivors, families, volunteers, staff – dispersed to meet with our district legislators. Our objective: to urge our legislators in both Houses of Congress to support two critical pieces of legislation that would improve access to therapies for blood cancer patients.

 

One bill, HR 460, would limit cost-sharing for patients who require specialty tier drugs. The other, S1365, would allow a patient on Medicare to appeal if a prescription drug they need is placed on a non-preferred drug tier, meaning it comes with very high out-of-pocket costs. The law would allow patients to appeal to have the drug placed on a preferred drug list with lower coinsurance, if their prescribing physician deems it the patient’s only option.

 

While delivering our message, many advocates shared their stories with the representatives.

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“What’s the point of research if patients don’t have access to the therapies,” Ethan Zohn, star of Survivor: Africa, and a two-time Hodgkin lymphoma survivor, told Morgan Brand, an aide to Sen. Charles Schumer (D-NY).

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We were treated to two more special speakers during our morning session. Sadie Floyd is a 22-yer-old competitive drag racer who was diagnosed with acute lymphocytic leukemia when she was 2. She has committed to using her racing career as an outlet to get the word out about blood cancers.

“What LLS does on a daily basis is why I am alive today,” she said.

 

Rep. Anna Eshoo (D-CA) urged us on, saying “I love to be with advocates. You have power.”

 

We concluded our three day conference with a special performance at D.C.’s Union Station by Charles “Chip” Esten, a singer and actor, known for his role in the ABC drama series “Nashville.” Esten’s daughter is a leukemia survivor.

 

After the devastation of hearing their daughter had cancer at age 2, Esten said learning that there were treatments with a good chance of success turned their fears to hope. “That hope didn’t come from nowhere; it came from research and it came from funding that pays for research.” Today his daughter is 14.

** BUT Chip did something way more personal for ME, Lynda and Dezma:

 

As we gathered at Union Station, passersby stopped by to visit our Awareness Wall, placing stickers declaring Cancer Ends With Me and signing our petition to support the legislation discussed above.

 

Over the past three days of our conference, “Leading the Way to a World Without Blood Cancers,” we heard from renowned researchers, survivors, families and volunteers and shared best practices. We celebrated a major milestone – surpassing $1 billion in research investment – and we brought our cures and access agenda to the Hill. I leave feeling energized and knowing that all of the participants feel same the same – ready to keep fighting to make blood cancers a story of the past. LLS is making cures happen today, not someday.

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