It’s anniversary week and I’m not particularly fond of it. I try to smile through it all but this year is particularly awkward and lonely. A big thank you to Boston Strong marathoner Cyndi who posted this blog with all the right things to say when nothing right comes to my mind at this time.
It sucks. It is sad, it is lonely, it is heart breaking, it is life changing, it is painful, it is tragic, it is pathetic, it is devastating, it is depressing…it is just so damn bad. You feel as if your life will never go on. There is a void that can never be filled because there is no other love in this world like the love of a mother. There is so much that she has missed and will miss. It rips you up and tears you down. You feel empty, you feel lost. It leaves a huge gaping hole in your heart that will never, ever heal. It messes with your mind. It brings anger into your heart, anger than you know your mother wouldn’t want you to feel, but you feel it anyway. You’ll miss her, probably more…
“When I grow up, I want to have cancer,” said no one ever.
I walked into Starbucks this morning and was greeted with a hug by an old friend, Dave Martinez. He sat with me for a short while to chit chat about cancer, what I do and what he does and how to reach those who need help.
No one ever thinks this will happen to them. We don’t prepare properly and maybe we do this as part of wishful thinking. Truth is that every person that I’ve ever talked to who is currently battling cancer or has successfully fought cancer has told me the same horror stories as they dealt with medical costs. In fact, I can honestly say that I have never met a single person touched by cancer who has told me that medical bills have never posed a problem and they are doing just fine and dandy.
No one has ever told me that they felt they were prepared enough to handle the financial burden of cancer treatment.
No one has ever told me that their employer or their business was completely ok with taking a few years off to heal.
Do YOU know of anyone who has it all together and ready to beat cancer if and when it comes knocking at their door?
I don’t. Even with as much as I have witnessed, I still don’t feel secure enough to know I have a fighting chance.
So what stops us? Do we feel invincible to cancer? Do we feel like cancer is something that hurts other people and not us? Do we just want to avoid the whole idea of it all? Is ignorance really bliss?
By the time I get the inbox full of questions that looks something like…
Every cancer patient’s situation is different. How I chose to help as many as I could is by speaking openly and candidly about cancer to as many as will listen, participate in fundraising activities that help in identifying both the CAUSE and the CURE of cancer world wide and for the treatments, co-pays, colonoscopies for early detection, transportation and housing of current cancer patients. How YOU choose to help may be something completely different but if we all do one thing, something, a little bit… together we can do so much!
I still have a few hundred dollars to raise and ask for your help. This half Ironman that I have scheduled in less than three months is the last big event I’m doing with Team in Training. Please find it in your heart to give just a bit if you haven’t ever before. $10, $20 any amount helps. My mother counted on this very same organization to help our family and I am very very grateful to have had the Leukemia and Lymphoma Society help our family. I was gifted six years after Momma’s diagnosis and almost three years after Sissy’s to live precious, sacred memories with them. A $20 donation can help another family with the opportunity to make one more special memory. Please grant that to them.
Donate online here on this link: http://pages.teamintraining.org/sctx/yourway16/mcardenasb
The Leukemia & Lymphoma Society (LLS) is the largest voluntary cancer research agency specifically focused on finding cures and better treatments for blood cancer patients. With the scope and scale to fund many projects at the same time, LLS supports hundreds of cancer scientists around the world.
Research Depends on You
Unlike commercial enterprises that consider blood cancers as “orphan diseases” with small markets and limited profit potential, LLS funds research based on medical need without regard to commercial return or market size. Every dollar invested comes from charitable support from concerned donors.
Extend Your Reach
LLS funds hundreds of promising researchers at leading cancer centers and universities worldwide. And since LLS has no campus or laboratories to maintain, your investment funds more research and less overhead than a donation made elsewhere.
Why Invest Now?
Many scientists, clinicians and clinical trial participants have developed and improved current standards of care over time. It takes about eight years to develop a successful new drug. The time to invest in new therapies is now.
What Will My Donation Do?
Encourage scientists to pursue blood cancer research. Grants to young scientists help grow research talent even as federal research funding becomes increasingly limited.
Develop “targeted therapies” that kill cancer cells selectively. By hitting specific molecular targets, these treatments don’t harm patients’ healthy cells, resulting in fewer dangerous side effects.
Test immunotherapies. Immunotherapies strengthen a patient’s own immune system so it can better fight infections and attack cancer cells, reducing the need for damaging chemotherapy.
Improve the safety of today’s cures. LLS funds research to predict, manage and prevent complications in patients most at risk for long-term and late effects of treatment.
Help patients and their families make informed decisions. LLS supplies information and counseling to help guide patients through their cancer journey and access current treatment and clinical trial options.
Provide financial aid and co-pay assistance. A cancer diagnosis is hard enough without having to deal with its financial burden. We provide programs to help relieve the economic strain of a blood cancer diagnosis.
Offer community services. Among the wide array of programs LLS provides are those that link newly diagnosed patients with trained volunteers and that help young cancer patients return to school after an absence resulting from treatment.
Encourage our state and federal legislators to support blood cancer issues. With your help, LLS brings to the attention of lawmakers the urgent need for increased government funding and support of research and patient access to affordable treatment and quality care.
Make a Difference!
Donate online here on this link: http://pages.teamintraining.org/sctx/yourway16/mcardenasb
I’ve been asked a lot lately about Heart Rate Zone training since posting a bit about it on some of my social media accounts. Now let me be clear about this because there is a group of cynics out there who are quick to bash this way of training and/or quick to simply bash me and all that I do – I am no pro at this. Heart Rate Zone training has honestly become the most rigid, difficult, brutal and merciless type of training that I have ever done. But I’ve learned so much about myself, my body and my level of health and fitness in the process. I highly recommend you give it a try because knowledge really is power.
HRZ training is NOT about how fast you go or how far you go.
I’ve spent these last few years focused in on how fast my marathon time was, counting my strokes while swimming laps, adding and subtracting and adding again on the weight scale, or calculating how many miles I ran or rode. While all of these things I did are important, I completely missed the boat on what should have been the foundation to this whole journey.
HRZ training is all the above while measuring how effective and efficient your body is becoming while doing all these crazy workouts.
Here’s the basics:
Get a heart rate monitor and strap it on as per the instructions. Find your resting heart rate by laying down, relax in a quiet peaceful setting for at least 20 minutes (preferably when you first wake up in the morning before any coffee, caffeine or ANY heart rate inducing/reducing medications or foods have been ingested). Note the number on your heart rate monitor. If it bounces around for a bit, that’s ok. Take the average. This should be your baseline to work with. Check your resting heart rate once a month and note any changes… hopefully you’ll see a reduction in that number as time goes by and workouts increase.
Don’t have a heart rate monitor and want to know your heart rate right this very moment so when you continue reading, you’ll know what to do and what to expect during your next workout? No problem. Heart rate is measured in beats per minute. It can be measured at your carotid (neck) or radial (wrist) pulse. Be careful not to place too much pressure on your carotid artery as you can compress it and block blood flow. Once you find your pulse, count the heartbeats for 15 seconds and multiply by four to find your current heart rate.
See the table below and find your age
Heart Rate During Exercise
Measuring your heart rate during exercise gives you an indicator of how hard you are working. As your workload increases, your heart rate will increase. Heart rate is also an indicator of fitness. The more aerobically fit you are, the lower your heart rate will be for a comparable workout than someone less physically fit. This also means that you will have to increase your workload to achieve the same fitness benefits as you become more physically fit.
Target Heart Rate
To maximize performance and get the most benefit from your workout, you need to find and stay within your target heart rate zone throughout your workout. Calculate your maximum heart rate by subtracting your age from 220. A 30-year-old woman’s maximum heart rate would be 190 beats per minute. Depending on your level of fitness, the American Heart Association recommends a target heart rate between 50 and 85 percent of your maximum heart rate. To calculate your target heart rate, take your maximum heart rate and multiply by 0.5 and 0.85. For a 30-year-old woman, the ideal training window is a heart rate between 95 and 162 beats per minute. If you are just starting to exercise, keep your heart rate closer to the 50 percent target. Those who have been regularly participating in aerobic activities should aim for the 85 percent range. When measuring your heart rate during your workout, do it as you are exercising or stop briefly and take it immediately as it will decrease rapidly with rest.
Additional Tips
You should be working out at a level that feels challenging. If it feels easy, pick up the pace a little. If your breathing is labored, you are extremely fatigued or your form is suffering, ease up. If you are exercising in water, your heart rate is an average of 17 beats less per minute, so decrease your target heart rate accordingly for an aquatic workout. Also check your medications. If any of them have a blunted heart rate response as a possible side effect, the use of target heart rates can be dangerous for you as heart rate is not a good indicator of how hard your body is working.
Once you figure out your zones, the rest is like following the speed limit signs on the roadway. Since they are based on your redline, or lactate threshold, that becomes the point from which all the other zones are based—anything below the threshold heart rate zone (zone 4) is more aerobic in nature and easy in intensity, and anything at or above it is more anaerobic and high intensity.
The key to optimizing this knowledge is to train purposefully based on these zones. In a typical training schedule you’ll follow the flow of easy and hard workouts. You might have a tempo workout on day 1, and follow with an easy effort workout (or two) on day 2 and 3. By alternating hard and easy workouts, your body is able to recover efficiently, adapt to the demands of the workouts, and get stronger.
Many make the mistake of training solely by pace and end up training too hard most of the time (la la pace). It’s an effort that is too hard to be easy, and too easy to be hard. Somewhere in between purpose and the point of no return.
This doesn’t happen when you tune in and run by your body (effort) because pace becomes the outcome of every run rather than the purpose.
There are many variations of the zone percentages so don’t let that confuse you. The idea is to make friends with what they mean and then create a training plan based on the purpose of the run rather than the pace.
Here is a percentage chart by authors Foster and Edwards and how to use each zone in your training.
Zone 1: 60-70% of threshold heart rate: A very, very light intensity effort level marked by easy breathing and complete conversation. For many runners, this zone comes in the form of a walking pace as it is a very low intensity. Use it: for warm up and cool down, easy recovery workouts.
Zone 2: 70-80% of threshold heart rate: A light intensity effort level where you can still hold a conversation. Use it: for easy/recovery runs, warm up and cool down.
Zone 3: 80-90% of threshold heart rate: A moderate intensity effort level where you begin to hear your breathing, but you can still talk in sentences. Use it: long runs, training runs.
Zone 4: 90-100% of threshold heart rate: A comfortably hard intensity effort that is just outside your comfort zone where you can talk in one-word responses. Use it: for tempo runs and mile repeats to raise the lactate threshold (redline) and be able to run faster at easier effort levels
Zone 5: 100-110% of threshold heart rate: A hard intensity effort well outside your comfort zone where you can’t talk. Use it: for interval workouts and the final finish of your race.
The aim is to match your training workouts to one of these zones to maximize every run and its benefits. When you do, you’ll notice your recovery dramatically improves, your performance improves, and you’ll have fewer aches and pains from pushing too hard.
How has Heart Rate Zone training helped me?
My family’s history of heart problems go deeper and further than cancer so I do take this VERY seriously. I understand and am taking measures to reduce my caffeine addiction that clearly affects how hard my heart works, especially during tough workouts. Learning about my own personal heart rate efficiency and effectiveness is has been a huge wake up call to me.
I’ve learned that you can be a 30 year old size 2 and jacked up on pre-workout, diet pills and in greater risk of cardiac arrest during a half marathon that she attempts to finish in 1:20 pushing herself at a Zone 5 than a 40 year old size 20 pacing herself at a manageable Zone 3 pace and finishing that same half marathon in 2 and a half hours.
Currently, I am building my body up at a Zone 2 with longer workouts so that when I do my tempo and interval trainings as Zone 4, I actually increase my pace and endurance. By controlling my heart rate at a Zone 2, my body becomes more efficient with it’s power and effectiveness.
How is this different from what I’ve done before? I love pinterest. Before I go to bed, I try to unwind, zone-out and get “inspired” by asking pinterest for workout motivation. What comes back to me almost every single time are posts that have “no pain no gain”, “train insane or remain the same” and other such motivators that tell me push harder and not give up no matter what. To me, this means I need to go further, harder and faster. How heart rate zone training has changed my workouts is that it has worked on my patience. It has made me understand that while at Zone 2, it is still training my body for endurance. I can spend 4 hours on a tiny, uncomfortable bicycle saddle – which is a tough feat for any human – but not have the fear of going into cardiac arrest or muscle strain and injury because I’ve built up the stamina and an easy zone. I can jog for 9 miles, smile and sing and two days later sprint a couple of miles at half the pace of my long run. It’s the toughest thing for me to be riding or running at Zone 2 and get dropped or passed up by fellow riders and runners because I want to be with them, push with them, be a recipient of their encouragement… and I can’t do that when they’re a mile ahead of me.
Yesterday, a group of riders passed me up and as I yelled out to them “Y’all are dropping me like a bad habit!!!” I remember the wise words of Ramon Hermida:
One thing I learned a while back was: ride your own ride, at your own pace. I know what my goals with cycling and exercise are. I don’t let others dictate what I should be doing, and don’t even bother attempting to explain to others my rationale for doing the rides that I do. What matters is: there is a reason and I know what that reason is. Another thing that I learned is not to pay attention how others want to define me: whether it be by my spirituality, by my race or ethnicity, by my looks, by my weight, by my career, or by my material possessions. That is their problem, not mine. I am in charge of my own story. I can sincerely tell you that each year that passes has been the best one in my life. If not, then each day I have the opportunity to change it and make it so.
So I smiled as they all zoomed by me and I rode my own ride at the pace my coach designated for me to ride. And while I am explaining to you all why I’m doing what I’m doing, it is done in the hopes that it educates those who WANT to learn how to become a healthier, more fit version of themselves… and not for comparison sake or to compete against anyone. I am not looking for validation or acceptance from anyone but welcome everyone’s cheers and advice. I encourage the whole world to join me in this adventure but HIGHLY encourage you to join TEAM if you have a connection to cancer. Doing this is MY choice and I’m doing it the way I want to for my own reasons and I love that I am still learning something new about all that I do and all that I am every single day.
I hope that I have the patience to go slow when I need to go slow. I hope I have the power to go fast when I need to go fast. I hope I have the energy to go the distance when I need to go far. I hope I can do all of this so that I can make this the foundation of WHY I started this whole crazy journey in the first place. I am building my foundation.
I am in my now, investing in my future so that I honor my past and help make a positive impact on someone else’s future.
I watched a movie last night that I got a great kick out of. It’s called Hector’s Search for Happiness and it chronicled this man’s journey around the world in search of happiness. During this movie, I was taken back to a time when I was sitting at the little bistro table with my bike guru at the front of his shop. He asked me how things were going and I responded with something like “what I would do to have just a normal average week with nothing super monumental or super devastating” implying that there were always ups and downs in my life. The movie had one particular scene where Hector was in Tibet and a group of Tibetan monks were happily celebrating “all of it”. Hector couldn’t see it and didn’t understand. I think that was me. I couldn’t see it nor could understand it. At the end of the movie, the powerful flood of all the emotions is what clicked finally. It was all of it, the good the bad the ugly… it is all of it that has been my happiness. So I get it now.
In my own pursuit of happiness, I have found happiness in the pursuit and it is all of it and I celebrate it. (Confused? Watch the clip in the video link below) My wish today is that we all become as enlightened into the mystery of happiness. My journey has made me happy and I know my destination is still so very far away. Taking the difficult (higher) road has been hard but in the good, the bad and the ugly… I have found happiness. I hope you do, too. Cheers. May this journey continue on for a long time.
Mission moment: “It’s not about me and it’s not about Dezma losing her fight against cancer. We are all still here, fighting for her and every other person fighting. So long as we continue to fight, we aren’t losing! Dezma hasn’t lost the fight.”
German, my run guru and cheerleader of my crazy dreams, advises the new team members on shoes, form, gear, practice, nutrition, hydration and consistency.
Sarah pacing Angel because sometimes he needs that extra little push at the end
I met Rolando about two years ago and finally got him onto our TEAM!!! I’m so happy and proud of him!!!
Sarah and Gio soaking up the sun
The first day of practice, a group practice with both the Marathon team and the Triathlon team, was so incredibly beautiful!!! The skies were blue, the air was crisp, our smiles were big and our hearts were warmed because Sarah was right there with us!!!
I talked about perception earlier and I’ve taken it deep into my heart and hoping to better show you what I see. Learning how to use the new gopro and have a ways to go… and no time to do it in!!! I’ll do the best that I can. I had to change the original song and quickly use one that Youtube chose FOR me and it ended up chopping it at the end instead of the fade out that made Jeanice’s flirty little hop at the end kinda cut off…
Training, watching what I eat, fundraising and learning new camera and video editing tricks is really tough.
Shouldn’t complain though… it really was a stunning day with great people!!!
A SPECIAL THANKSGIVING MISSION MOMENT… please read, and remember that there is still work to do. #TNTSCTX
Thanksgiving by Kristie Escoe
“Thanksgiving. Giving thanks. Something I’ve found pretty easy to do most years, and took for granted pretty much every year up until now. Sure, I know a little bit about worrying about the health of family members. So I thought I was a veteran at worrying, but always managed to give thanks irregardless. WRONG. Nothing prepares you for the fear and worry when your child is ill. More than ill. Ill with a disease that, even in this day and age, still claims innocent victims. And now you want me to give thanks?????
Imagine every year for Thanksgiving that you and your family go to a wonderful all-you-can-eat buffet. The food is always great and you look forward to getting the same delicious meal, year after year. So this year, you give your standard order to the waitress: an appetizer of “love”, a “caring” salad, the side dishes, “thoughtfulness” “compassion” and “laughter” and a big, juicy entrée of “good health and happiness for everyone”. The waitress brings you everything you asked for but the entrée. Instead, in front of you on the table, she places a big, fat crap sandwich. And the conversation goes a little something like this:
YOU: “Excuse me, I didn’t order this crap sandwich”
WAITRESS: “House special. You got it without asking”
YOU: “But I don’t want a crap sandwich. I want good health and happiness for everyone.”
WAITRESS: “Well, you got a crap sandwich.”
YOU (getting upset): “Well take it back and give me what I asked for instead!”
WAITRESS points to a sign that says “Absolutely NO substitutions”
YOU say adamantly: “There is positively no way I am going to be able to choke down this crap sandwich and I think it’s really unfair for you to expect me to”
And the waitress replies “Hey, look. You’ve still got love, caring, thoughtfulness, compassion and laughter, so try to appreciate those. Oh, I almost forgot, here’s your condiment tray for the crap sandwich. You also get big overflowing bowls of fear, worry, anger, guilt and resentment. Bon Appetit!”
And so you’re looking around the restaurant, feeling really grumpy about your crap sandwich, and you realize that there are a lot more people with crap sandwiches than you ever thought possible. And from the looks on their faces, none of them ordered them, either. Then you see a couple of tables with really, really big, Dagwood-sized crap sandwiches and you summon the waitress again. “Excuse me, why are their crap sandwiches so big?” And she explains that those people are facing situations even worse than yours. Their kids haven’t responded well to treatment, have had cancer relapses, or worse yet, died. And you start to think maybe your crap sandwich isn’t so bad after all. Maybe you should keep your big mouth shut, choke it down, and be glad when it’s all gone and everyone is well again. And then, right then, your waitress reminds you of one last thing: “Management reserves the right to serve you another, bigger crap sandwich, anytime they want”
We are nearing the END of treatment, not just starting out. The crap sandwich we have left on our plate is crumb-sized… we’ll be choking down the last few bites in the upcoming year and then OUR. PLATE. WILL. BE. EMPTY!!!
But, we’ll be required to hang out in the bar of the restaurant for the next five years or so. We won’t order off a menu, or make eye-contact with any employee on purpose, heaven forbid. For the next five years we will sit in the bar and keep a low profile and hope and pray the waitress doesn’t come back to our table. I’m not sure when we can ever pay our check and leave… and as long as we’re here, we’ll continue to see crap sandwiches being slung out of the kitchen on a regular basis. You don’t want one yourself, and you hate to see anyone else getting one, either. But you know they’re coming. So you just duck and pray you don’t get hit.”
The above was posted on the Team in Training Central South Texas facebook page. Now, I know I’ve been guilty a few gazillion times of complaining over things that ultimately in the big scheme of things don’t really matter and take for granted so many things that so many others would give anything for.
I’m trying. I really am trying to slow down, breathe life in, smell the roses, see the silver lining and enjoy my itty bitty little crap sandwich. You know… it really isn’t all that bad. How’s yours? It really isn’t as bad as some of the others around, huh?
Wishing everyone a very happy Thanksgiving and hope that you all have the opportunities like I do to enjoy a feast of great bounty with friends, family and dear loved ones above and acknowledge the endless beautiful blessings around us. May we all seek betterment for mankind, find contentment and gratitude for our current possessions and situations, live peacefully amongst all peoples with encouragement, kindness, tolerance and compassion for all. And in doing so, may we find inner peace, health and happiness.
P.S. As a rule of mine when I first started this blog, I said I wouldn’t write about my personal relationships with my children and husband and other close family members where it didn’t pertain to my health and fitness journey and the road to a cancer-free world. Today, that rule will be broken. These last three years could have easily been a downward spiral to a rock bottom of epic proportions. But they weren’t. I’m not saying they weren’t difficult – because they surely were! But had it not been for the love and support of my family, I’m not really sure I’d be here today smiling like I am. Soooooo no details buuuutttt I find myself in a similar situation in that I’ve lost so many of my close family members over the last few years and in the next few days, I am about to lose another. And while this loss is not one resulting from death or cancer, the distance will sting my heart with excruciating pain. For this reason, I have been quite silent over the last few months and will likely continue to keep the posts rare until I find the strength and time to journal the thoughts of a fluffy-middle-aged marathoner/triathlete/centurion and future Ironman’s journey to a cancer-free world.
Just six short months ago, I made the decision to do all I could to help those who have been hurt by cancer like how my family and friends and I have been hurt. Running a marathon would not bring the world a cure. It would not bring back my best friend Rodney Perez, my Aunt Sissy (Luz Gomez) nor would it bring back my beautiful Momma (Mimi Cardenas). Crossing the finish line after six months of insanely dedicated workouts was far from the end. On the contrary, I believe it is just my beginning.
Like I said before in my earlier blogs, I had no clue what possessed me – the overweight, non-athletic, outta-shape, 40+ anti-gym rat – to enter a race, much less a MARATHON!!! But I followed my signs and trusted the advice of Sissy. She was right.
“Life is not a race — but indeed a journey”
Did you know I have weather angels?
I expected myself to be the last one in since I was the only full-marathon participant who had never run before… EVER in her life. So when it came down to our team practice runs, I dreaded having the others wait hours for me to come in. I would pray the night before for a “healthy” run and over cast morning with a breeze so that the others wouldn’t have to suffer while waiting for me. Each long run of the season that I ran with the team had over cast mornings with a cool breeze up until the very moment I finished. And yes, I did finish without any health problems. I must have weather angels and the blessings from above.
Did you know that I live amongst angels?
From the moment I decided to make this crazy journey, I was led in the right direction to the angels who live amongst us. Had it not been for German, Lucia and all the inspirational staff who took me under their wings at Valley Running Company, I would not have lasted two weeks in this “sport”. Had it not been for my run class, Coach Jetter, and all my wonderful run clubs like iRun, Run Walk Crawl, Me Myself and Run, Sole Sisters and my TnT Team mates and extremely patient TnT coaches and my fabulous mentor, I would have given up at shin splints and ice baths. My boss – wow. She lost her father to cancer a year before I lost my mother. She knows my drive and determination very well. Probably because hers is pretty identical to mine. Her support was beyond extraordinary. I knew she could read right through me when I was hurting and she knew that I knew. And she let me continue. I had to. Anna, my co-worker, had been battling leukemia from the first day I was employed there. Her strength and courage drove us all to pitch in what ever we could. THIS was all I could do.
For those of you who don’t follow me on Facebook, here are the highlights that I posted right after the race:
1. As I got the high five from Jean Gearhart at station #4 the band nearby played “Hero” from the Foo Fighters (the band that my brother Donny loved), she said “Looking good Mama” – just like my Momma used to say. I couldn’t stop the tears. 2. A soldier in full gear with a full ruck sack and boots passed me at mile 10. I looked to the side and the crowd saluted him. 3. As my body began to break down at mile 17, a man not much older than me said “excuse me” and passed me on the left with his daughter. How do I know this? The back of his shirt said he was running for his daughter. The girl beside him said “survivor”. She had to have been my son’s age. 4. I hit my “wall” as I entered the island. My legs were heavy and stiff and I felt like I was giving birth again. The pain was intense. A woman yelled out to me “You are running to fund the research that has allowed me to live. THANK YOU so much! I am here because of YOU!” 5. The Perez family all came to meet me at the finish line. Rodney’s mom came up from behind me and hugged me and cried for about 15 minutes. We spent the evening having a wonderful dinner and catching up on life as we know it now. None of us could gather the strength to talk about Rodney. We still miss and love him so! 6. 3,000 runners sit for the inspiration dinner the night before the race. Six big screens hang from the ceiling with a picture and a caption “We are running in Memory of Luz Gomez” – that’s my Sissy.
My mother passed away the week that I had planned to run the Austin 10/20 race in memory of Sissy. As many of you know, I did not run that race so that I could spend those last few days with my mother. But I am a woman of my word and Sissy is really that special to me so I must continue. The Nike Women’s marathon will be run for her.
And how very fitting. Sissy really knew what she was doing for me. I knew she had it all planned out. I am so very grateful to her and hope that each of you continue to join me on my journey. Come run with me.
Each step I take brings us closer to a cure. This eases my pain and sadness in knowing that those last few years that my mother gave her body to have science experiement on her so that others could be cured was not in vain. #Relentless for a cure
So it’s send off time. This is when the team gets all the instructions for hotel stay, meetings, check ins, and everything else for game day…. CapTexTri.
We all meet at Cordon’s. It’s a beautiful day and we’re all outside.. and it’s mission moment. This is the third time I’ve been asked to do a mission moment in my history of Team in Training. The following is what I said:
March 21, 2012
quit (verb) – to stop trying, struggling, or the like; accept or acknowledge defeat.
These past two weeks were emotionally difficult for me. I saw my usually vivacious, super-power infused mother weak, frail and suffering. Whatever was in this last treatment knocked everything out of her. I could get my thumb and touch it with my index finger and her leg could fit right through it. Her hair has now fallen off and her normally wrinkle free olive skin has an odd grayish/yellow tint to it.
I was worried – really worried – for the first time ever. So I spent the weekend with her and then called her main doctor at MD Anderson. After questioning me about her symptoms, we agreed that it was best for her to return to Houston for a week so he could monitor her better under medical staff care. I was not comforted by his concern.
She grabbed my hand and squeezed it with all her might and looked me straight in the eyes and said “I’m worried about Myssie. She has so much on her plate right now. Can you keep an eye on her and help out?”
We had been warned that her memory functions may be lost as a result of her last radiation treatment. I don’t know who she thought I was at the time but I was glad that I had the strength and courage not to have the shock and sadness show in my reaction to her as I replied with “I will Momma, I will. Don’t you worry. I’ll take good care of her.”
That was Sunday about noon time. They drove to MD Anderson on Sunday afternoon and met with her doctor on Monday morning.
I was sitting at my desk working on a proposal for a client of mine just shortly before lunch. I had a ton of meetings scheduled and needed tons more to make my quota. The stress was insane. That’s when I got the phone call from Dad.
“Myssie, can you talk?”
“Yes Daddy. What did the doctor say?”
“It’s not good. There’s nothing more that they can do. We’re coming home…. right now. They’ve released her to hospice. We’ll be home about 6:30.”
There must have been at least a year of silence after that. I was crushed.
Why?
I was asked just days ago by my Team in Training coach why I was running. Why I was putting my body through this? What was I doing this for?
As silly as it may sound, part of me was hoping that God would see how hard I was trying. That He would see that I was willing to take the pain away from her and volunteer it onto me in order to not have her suffer any more. I wanted that pain and suffering to quit. I wanted cancer to quit. Because I wasn’t going to allow myself to quit. I would never quit.
Well, that was until I heard those words from my dad.
I did want to quit. I wanted so badly to throw in the towel and give up. Why should I run? Really, why should I? It’s not like running a marathon will produce a cure for my mom as I cross the finish line. What am I doing? I should just quit.
I thought long and hard about how to tell friends and family about the news. I wanted to be angry and blame everything from preservatives to toxic land for her suffering. But I am so glad I didn’t. I took a deep breath and took a step back and told myself now is how I must example the way she brought me up.
The following is what I posted to friends and family on my facebook wall:
Science and medicine has done all that it possibly can. Momma has shown incredible strength and faith through these tough 6-plus years. The choice to discontinue treatment does not mean that she has quit. It means that she is strong enough to accept God’s will and live the remainder of her life with her family and friends at home instead of hotel rooms and hospitals. I am so very proud of her bravery, so very thankful to her miraculous team of doctors and so very grateful for everyone’s prayers, kind gestures and help. Keep them coming.
See, my mother is not a quitter. Cancer will likely beat her body. But it won’t beat her. She’ll never quit. Her legacy will live on and continue to teach us, to love us and to give unto others. She never quit. And neither will I.
The last two and a half years I’ve spent running, swimming and biking alongside the most courageous, selfless and kind athletes in the world. Many of them were going through cancer treatment, had recently successfully beat cancer or were friends and/or family members of those who had lost their battle to cancer. Many of them. Too many of them. Way too many of them.
Two weeks ago, I walked 9.7 miles in and around our Nation’s Capitol pleading with our political leaders to help make cancer treatment more accessible and more affordable for cancer patients, MS patients, Alzheimer’s patients, Parkinson’s patients … and more. I was not alone there either. I begged alongside a TV celebrity, Ethan Zohn, the winner of the TV reality show Survivor, who really was a cancer survivor. But after he won the show, he found out that cancer stuck once again. He shared with me his completely candid and genuine emotions.
The whole world thought he was this tough guy, strong enough to beat cancer, strong enough to win in the brutal jungles of Survivor. He was a pillar of hope for those who were currently battling cancer. And suddenly he was scared again like a little boy. What was his fear? If he went public with his disease and DIDN’T win, what would that do to their hope?
Thankfully, he did go public and he did beat cancer a second time and he is still scared he’ll have to fight it again a third time. That fear looms over the head of cancer survivors all the time. Until we find a cure, that fear will always be there… for every single one of us. None of us are immune.
As he spoke to us, everyone began to weep. Oncology doctors, nurses and social workers, LLS volunteers, family members and loved ones of those lost and survivors, like Ethan, all connected.
And that’s when I was asked “Are YOU a survivor?” and the woman next to me put her arm around me and replied “She lost all of her family except for her father to cancer in one year. She is a survivor. She is all that is left.”
Truth is, we are all survivors right now. We are all living with cancer. Because cancer doesn’t affect just the patient. It affects us all. And until we find a cure for cancer, we have no choice but to keep living, keep fighting, keep running… keep TRIing.
I was going back over my memory of CapTexTri from last year and then googled it to see what others had recorded from it just to make sure that I hadn’t missed something that others experienced. I found a news site that had a gallery of photos in a slide show that was pretty much in chronological order from start to finish.
Seriously cool how I burst out into laughter as I saw myself on there!!! I had no clue I was in that slideshow. And it was perfect too because I had just talked to the TEAM about how important it was to me to always be caught smiling no matter how bad my body was hurting because my Momma never showed pain or fear to the world during her treatments – although I’m sure she was plenty scared and in more pain than I could ever imagine.
This hasn’t been an easy road. Certainly not filled with rainbows and butterflies!!! Each day brings me face to face with people who scoff at my actions and even more who get a sick thrill to stab my back… but all of this has made me stronger. I may not be where I want to be but I’m much further away from where I hated to be.
I pray that this journey will lead me to where it is that I SHOULD be and I have faith that it will. What I do know from experience is that no success that has value was ever earned without sacrifice and hardship.
I shared with you this last weekend’s “hero” reference and what it meant to me. I remember naively saying to myself that nothing could top that… oh boy, was I wrong.
On Monday, shortly after I picked up my little boy from school, we went immediately to Barnes and Noble bookstore to get a book so that he could work on his project. While walking the aisles of the store, he pointed to a journal.
“Look Mom!” he said.
“Wow! That’s cool! Who do you want to get this for?” I asked.
He looked at me with a puzzled face, “You! You’re Wonder Woman.”
God, please, forgive me.I know lately many times I’ve questioned why I am on this crazy journey and have questioned to what extent it is benefitting me and my family or to anyone for that matter… and why some of those who I care most about in this world have tried desperately to dissuade me from this path…
Thank you. Thank you, God. Because at that moment in that store holding my hand, he looked at me the exact same way I looked at my Momma.
While I hardly feel like I am a Super Hero, I do feel that if anyone does feel this way about me, it is certainly just as I stated in my farewell speech as Miss Edinburg over twenty years ago, “I was chosen Miss Edinburg not because I was me but because of how my Mother taught me to be. I am a reflection of her. This crown belongs to her.”
She is the real Super Hero. If you feel that I am a hero or hear someone call me one, it is because you can see her in my eyes, in my heart and in my soul. And this is how I know she will always live in me.
She didn’t want people to pity her because of all she had been going through. She wanted to give them HOPE. And she’s probably going to be really upset that I’m including this in my blog for every Joe Blow in the whole wide world to read… but what very few people knew was that even after agreeing to go through experimental chemo cocktails with no success, shortly before she passed away, Sissy donated her body to science with hope that she would somehow still be able to help the world find a cure for cancer.
Somewhere out here in our world, right this very minute, there is a scientist out here closer to a cure because his or her medical journal has the results of a test that told the world that her body responded either negatively or positively to and gave that staff more insight because of her selfless choice. To me, that’s a real hero. Somewhere out here in this world, there’s a little bit of Sissy that still looks out for us.
Somewhere out here in our world, there are two precious boys (Nico and Sammy)who are likely going through those awkward growing up phases that boys go through – the time that I remember Donny the most (his awkward stage). Donny loved those two boys so much, more than anything in the world! Life just dealt Donny too much at one time and he had a bad habit of locking up all his worries inside his head and he never coped with those pressures in a healthy way. With Momma and Sissy at MD Anderson with cancer, losing his pharmaceutical sales job, going through a divorce and dealing with debt growing at an exponential rate because of excessive shopping habits and worst of all… the emotional stress that all this did to him, I’m very happy that he prepared to take care of his boys after his death. To me, with all that he had to endure and still come out with his legacies taken care of, that’s a real hero.
And here… right here, I am challenged to push my body and mind to exceed limits I never knew existed. I am constantly questioning myself with “Is this how Momma would have done this?” It is now my responsibility to make sure I live out the rest of my life the way Momma taught me to. I hear her voice echo in my head over and over “el flojo trabaja doble”, “the early bird gets the worm” and “the squeaky wheel gets the grease”. You see, when I was young, I was quiet and shy and very insecure with just a handful of close friends. I was a quirky introvert… just like my dad. But I wanted soooo much to be more like my Momma. She was awesome! She was cool! She was beautiful! She was talented! She was smart! She was popular! She could do anything! Anything!!!
She loved her family. She worked hard. She played harder. And she was involved in EVERYTHING that was cool in this little community! Ok, let me correct that… she MADE everything that she was involved in super cool!!! Because of this, everyone wanted to be around her because she was just so much fun to be around so all the events and organizations she volunteered for were always successful.
So this week as Daddy and I remembered Momma and Donny and Sissy, I was predictably given more signs… and of course… I had to follow. From the flower arrangements I placed at their gravesites, to the Beatles songs that played randomly on the radio, to the movies that popped up on TV, to my two little lovebirds that made it “official” this week, to the contracts that fell through (likely Sissy’s doings since she hated gossip and drama and knew that it would probably blow up in my face later on with them), to the return of peace and love and happiness back into what remains of our little family, to being asked by the Leukemia and Lymphoma Society to lobby for cancer research funding and easier access to affordable treatment for cancer patients in Washington DC in a few weeks, to the odd number of elephant sightings in just one week (Momma collected elephants)… I knew Momma was here… right here by my side still pushing me and triggering that voice in my head guiding every move I made.
It was right after our TEAM’s open water swim practice, after I successfully did the group’s Mission Moment without crying (even talking about the anniversary of Momma’s and Donny’s death), when Sarah’s mom, Anita, posted countless photos and videos of the ABSOLUTELY STUNNING LAKE and our group doing a phenomenal job at swimming from dock to dock and then called us all “Super heroes”. To her, I am a hero.
Do you have any idea how special that is? To have a little girl who is fighting cancer call you a hero?!?!?!
I don’t have words for this feeling.
If you knew Sarah and Anita… If you were lucky enough to get one of Sarah’s hugs… and she called you a hero… You’d be speechless, too.
I had refrained from posting a lot this week because I didn’t want my blog to have an air of sadness or instigate pity as a result of Momma and Donny’s anniversaries. But the joke’s on me…
It was two years ago today, right this very moment, that I crawled into bed with my Momma, held her hand, smoothed her hair back and whispered into her ear that it was ok to let go of us and stop the pain she was in. I remember hearing what the hospice nurses called the “death rattle”. I was the only one in the room with her in the end.
A few nights before, she had become quite antsy and restless. It was difficult for her to walk but she was adamant about going from her bed to the living room to watch TV on the couch. I lifted her up and walked her over, carefully holding her under her shoulders just incase she fell along the way. It was about 3:00 a.m. This would be the last time that she would have a conversation with me.
“I’m so sorry you have to see me go through this,” she said.
After I gathered my will and a bit of silence passed, I responded “I’m so glad it’s me you allowed to see you go through this.” I laid my head down on her frail bony shoulder as we sat on the couch together and she held me in her arms for the last time that night.
April 8, 2012, Easter Sunday, two years ago today… If you believe in the biblical story of Jesus Christ and know about the time when he began his journey of suffering, of crucifixion and death…it matches exactly the same time frame that Momma followed that day. I truly believe in the deepest part of my heart that she chose that day and that time to join her Lord and Mother Mary for that reason. I wish with all my might I could have faith and strength like hers.
I held her hand as she took her last breath.
No other honor in my life time can ever surpass that honor. I now live my life trying to smile like her no matter how hard it gets. I now live my life reflecting all that she taught me no matter what anyone else tells me. I now live my life like hers so that my children can feel the love that I felt for her.
I love you Momma.
The miles I run for you will always be Mimi’s Miles. Cancer picked the wrong woman.
RunMyssieRun 