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Patients’ Access to Treatment Act

Posted in Uncategorized with tags , , , , , , , , , , on July 22, 2014 by runmyssierun

I got this email today regarding my lobbying efforts in Washington DC earlier in May of this year. 🙂

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Dear Myssie,

Great news: thanks to advocates like you,there are now 133 Congressional Representatives signed on as co-sponsors of the Patients’ Access to Treatments Act!

That’s a 23 percent increase in support in the two months since our efforts on Advocacy Day – and a huge step toward legislation that could change the lives of cancer patients across the country.

Every day, our elected officials hear from constituents about competing causes. These new co-sponsors received thousands of phone calls and letters from LLS supporters and listened to your personal stories in our face-to-face meetings on Advocacy Day. The sheer passion of our community inspired them to join this movement – to have them standing with us on this issue shows that they’ve made cancer patients a top priority.

This bill is critical for helping blood cancer patients who are struggling with astronomical fees from “specialty tier” drug pricing. Essential medications are out of reach for many who need them to stay alive. The Patients’ Access to Treatments Act would require private health plans to limit patient costs for “specialty tier” drugs, and ensure access to vital cancer medications. Thanks to you, it’s one step closer to becoming a reality.

I want to thank you for standing with us on this issue. Together, we are making a difference for cancer patients and their loved ones.

Sincerely,
Brian Rosen
Brian Rosen
Chief Policy and Advocacy Officer
The Leukemia & Lymphoma Society

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#ideclare4lls – the squeaky voiced lobbyist from TEXAS

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , on May 9, 2014 by runmyssierun

I spent the last few days in Washington, D.C. with some pretty phenomenal cancer fighters – we made our voices heard on the Hill.  Y’all know that when someone else says it better than I do… I just let them. This post is taken from LLS Interim CEO Dr. Lou DeGennaro’s blog.

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With almost 400 cancer fighters declaring the end of cancer… I figured I would help you find me… I’m at the VERY top of the group. You’ll see three heads (I’ll be the third head) and mine is (if you imagine a clock, I’d be right at the 12) right smack at the top center

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After a group photo on the steps of Capitol Hill, where nearly 400-strong raised our hands and declared Cancer Ends With Me, (#Ideclare4LLS) we all – patients, survivors, families, volunteers, staff – dispersed to meet with our district legislators. Our objective: to urge our legislators in both Houses of Congress to support two critical pieces of legislation that would improve access to therapies for blood cancer patients.

 

One bill, HR 460, would limit cost-sharing for patients who require specialty tier drugs. The other, S1365, would allow a patient on Medicare to appeal if a prescription drug they need is placed on a non-preferred drug tier, meaning it comes with very high out-of-pocket costs. The law would allow patients to appeal to have the drug placed on a preferred drug list with lower coinsurance, if their prescribing physician deems it the patient’s only option.

 

While delivering our message, many advocates shared their stories with the representatives.

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“What’s the point of research if patients don’t have access to the therapies,” Ethan Zohn, star of Survivor: Africa, and a two-time Hodgkin lymphoma survivor, told Morgan Brand, an aide to Sen. Charles Schumer (D-NY).

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We were treated to two more special speakers during our morning session. Sadie Floyd is a 22-yer-old competitive drag racer who was diagnosed with acute lymphocytic leukemia when she was 2. She has committed to using her racing career as an outlet to get the word out about blood cancers.

“What LLS does on a daily basis is why I am alive today,” she said.

 

Rep. Anna Eshoo (D-CA) urged us on, saying “I love to be with advocates. You have power.”

 

We concluded our three day conference with a special performance at D.C.’s Union Station by Charles “Chip” Esten, a singer and actor, known for his role in the ABC drama series “Nashville.” Esten’s daughter is a leukemia survivor.

 

After the devastation of hearing their daughter had cancer at age 2, Esten said learning that there were treatments with a good chance of success turned their fears to hope. “That hope didn’t come from nowhere; it came from research and it came from funding that pays for research.” Today his daughter is 14.

** BUT Chip did something way more personal for ME, Lynda and Dezma:

 

As we gathered at Union Station, passersby stopped by to visit our Awareness Wall, placing stickers declaring Cancer Ends With Me and signing our petition to support the legislation discussed above.

 

Over the past three days of our conference, “Leading the Way to a World Without Blood Cancers,” we heard from renowned researchers, survivors, families and volunteers and shared best practices. We celebrated a major milestone – surpassing $1 billion in research investment – and we brought our cures and access agenda to the Hill. I leave feeling energized and knowing that all of the participants feel same the same – ready to keep fighting to make blood cancers a story of the past. LLS is making cures happen today, not someday.

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