Archive for cancer treatment

Patients’ Access to Treatment Act

Posted in Uncategorized with tags , , , , , , , , , , on July 22, 2014 by runmyssierun

I got this email today regarding my lobbying efforts in Washington DC earlier in May of this year. 🙂

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Dear Myssie,

Great news: thanks to advocates like you,there are now 133 Congressional Representatives signed on as co-sponsors of the Patients’ Access to Treatments Act!

That’s a 23 percent increase in support in the two months since our efforts on Advocacy Day – and a huge step toward legislation that could change the lives of cancer patients across the country.

Every day, our elected officials hear from constituents about competing causes. These new co-sponsors received thousands of phone calls and letters from LLS supporters and listened to your personal stories in our face-to-face meetings on Advocacy Day. The sheer passion of our community inspired them to join this movement – to have them standing with us on this issue shows that they’ve made cancer patients a top priority.

This bill is critical for helping blood cancer patients who are struggling with astronomical fees from “specialty tier” drug pricing. Essential medications are out of reach for many who need them to stay alive. The Patients’ Access to Treatments Act would require private health plans to limit patient costs for “specialty tier” drugs, and ensure access to vital cancer medications. Thanks to you, it’s one step closer to becoming a reality.

I want to thank you for standing with us on this issue. Together, we are making a difference for cancer patients and their loved ones.

Sincerely,
Brian Rosen
Brian Rosen
Chief Policy and Advocacy Officer
The Leukemia & Lymphoma Society

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What’s your limit?

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , on May 7, 2014 by runmyssierun

For two years I’ve busted my butt pushing my body’s limit and taking it places I’ve never thought possible. I’ve caught myself saying several times that there are no more limits anymore. Nothing is impossible.

Getting healthy —- no limits! I can do this!

Losing weight — no limits! I can do this!

Curing cancer — no limits! I can do this!!

Running 7 marathons — no limits! I can do this!!

Cycling 108 miles up a 5,000 foot mountain — no limits! I can do this!

5 triathlons…wait, but I don’t know how to swim… Who cares! Learn! No limits!!! I can do this!!!!

Ride my bike a couple of miles with Eddie through the streets of my hometown…. Uh yeah… See… I can’t do that. I’m limited. I’m not limited by legal limits because I’m legally allowed to ride my bike in the street but the ignorance, lack of respect and inexperience of automobile drivers limits my ability and now my life longevity.

Seems I got a big wake up call this week.

See, for a while I lived my life without limits. And IT WAS AWESOME!!!!!

But sitting in a courtroom this week gave me all new insights on limits… Legal limits.

All this time I’ve busted through perceived limits and countless finish lines but I see now that there are lines that no human being SHOULD cross. When a child of God, a fellow human being, crosses that line with complete disregard to all moral, ethical and legal limits, it makes me wonder if there is still another path to run (or ride) in front of me.

As I enter for the first time the Capitol of our great nation attempting to convince our elected leaders of necessary change that must take place in order for cancer treatments and possible cure for cancer to be both affordable and accessible, I am reminded of legal limits once again.

I find myself racing along a path with lines that can be pushed one way and limits that restrain in another way and lives at stake all around us.

I sat with women from all over Texas today sharing our stories of cancer. How we’ve all lost children and how we’ve lost jobs and how time had been stolen from our lives because of cancer. Each story was profound and each struggle prolific and each woman still had a smile on her face after sharing it with me… Just like Momma used to do.

And then I met Ethan.. A reality TV star. You would think his celebrity status would diminish the harshness of his struggle, or his professional soccer talent would hinder the brutality of his disease or even think… Nah, he’s too handsome to go through such pain and suffering. But cancer is not prejudice. It picks whoever it wants and it usually picks the good people. It picked his dad. He lost him to cancer when he was just a boy. And cancer picked on him, too… Twice.

Ethan was well known for his long hair but insisted on being in control of his cancer and shaved himself bald. He was still very striking. And then he shared a video diary of himself while on treatment.

He cried while watching himself as if the suffering all came back to him that very instant. He never said it but insinuated that there were moments that he didn’t think he could make it… And moment that he didn’t want to. And then he looked up with years in his eyes as he admitted the reality … “And it can come back again.”

The second time cancer hit him, he said “It hit me in the gut.” He said he had to do something …. SOMETHING. It was his “do something moment”. I know that feeling all too well.

My whole family had been effected by cancer. It will never ever be the same again. I am hit in the gut in a way that you may not understand but I promised y’all is be candid. And just as Ethan was incredible candid with me tonight, I’ll share this tonight with y’all….

I feel guilty. I feel guilty for not being chosen. I feel guilty for being healthy, for taking my health for granted all these years, and for NOT going anything until it was too late to enjoy it with those who are now gone.

There will be lines that can never be crossed. There will be finish lines that I hope will never end for me. Countless I hope! There will be limits that I hope to break and limits that I hope will never ever be touched.

Do you know what your limits are?

Oh Sissy… What a journey you’ve chosen for me!

*ps — I dreamt Donny last night. He was his six year old self sitting with me in front of the tv in the living room in the house on Samano watching Saturday morning cartoons together… As we always did. Can you guess what was on the tv? Can you guess what we were singing? #schoolhouserock #imjustabill

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My Birthday Wish

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , on February 24, 2014 by runmyssierun

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I am very grateful to have so many wonderful friends wish me well on my birthday every year but this year my wish is for those wishes to turn into $10 donations. In exchange for your donation, you’ll receive either a necklace or an orange or purple beaded bracelete with my Momma’s signature “I LOVE YOU” hand sign silver charm. Turn my birthday into someone else’s birthday to beat cancer. Together we can! Anything is possible. Donate online here:http://pages.teamintraining.org/sctx/txtri14/mcardenasb

After every race, I have a photo made with me holding up my medal with one hand and throwing an “I love you” sign with the other hand. That was originally done so that my mother could see my progress on facebook while she was at MD Anderson getting treatment. We always held up our hands with this sign to each other in the same manner that Carol Burnett tugged at her ear after each show for her mother.

It is because of this that our little sign has now suddenly become so popular at our local races… many of us are racing for someone that we love and when we see the photographer around, lots of us show our love to others by showing the sign.

Please continue to spread the love! On Tuesday, my birthday, I have challenged my social media friends to donate $10 instead of posting a HAPPY BIRTHDAY on my social media walls. In exchange, they’ll receive a necklace or bracelet with the symbol that means so much to me… and hopefully will allow others to beat cancer and experience a new birthday for themselves.

Anything is possible. Together we can.

Oh… wait… you’re a guy? Or you don’t like to wear jewelry because you’re always working out??? Well, you must stink. A lot.

(How’s that for a sales pitch, eh?)

No worries, you can still help on my birthday!!! Because all those technical dri-fit jerseys, sports bras, bike jerseys, cycling shorts, etc… in fact… anything that is NOT cotton that you wear while you sweat can use this.

Click on the photo to get WINdetergent to launder your own sports gear and finally get that funky smell out!

Click on the photo to get WINdetergent to launder your own sports gear and finally get that funky smell out!

WINdetergent has offered to partner with me on helping me fundraise in memory of my Momma and Sissy and Rodney and Donny and…. ya, it just goes on and on…

So why don’t you click here http://tnt.windetergent.com/myssie

and you can smell sporty fresh, celebrate my birthday AND help us with the fight again cancer!!! WINdetergent will donate $5 for every two-pack that you buy to my Mimi’s Miles fund with the Leukemia and Lymphoma society… but you HAVE to use THIS link

http://tnt.windetergent.com/myssie

Thanks a bunch!!! You guys are really making this birthday much easier to deal with 🙂

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