Archive for cancer

The lovers, the dreamers and me

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , on May 15, 2014 by runmyssierun

A man shared with me not too long ago that after he lost his child to cancer, he also lost his job, his house and his marriage. He used his sons college fund to pay for his daughters treatment and was head first in the quicksand of debt. He stared off into space as if he was reciting a poem that wasn’t authored by him. His voice cracked as he looked up and said “buy hey, I’ve got my health.”

I’ve had some pretty deep conversations lately with strangers. Isn’t that weird? How you can spill your guts to a total stranger easier than you can talk about those same feelings with your best friend? Hmmm you don’t? Well at this moment and with this topic… I did.

Maybe it’s because I’ve spilled my guts before to people who I thought were friends and they used that weak point against me later on. I’ve found that sometimes speaking to complete strangers is quite liberating. We can’t judge each other because we’ll never see each other again. It’s pure emotional venting of the soul.

Oh… wait… did I just call myself weak? Fantabulous!

See, I am weak. I am no stronger than anyone else out here. I cry. I sob. I turn red and blotchy and boogers run uncontrollably out of my nose and get rashes on my neck because of emotion. I shake in anger. I can’t speak in clear sentences when I’m flustered. I can’t sleep some nights. I can’t wake up some mornings. I have a tremendous amount of guilt that I must live with every single day. Why did cancer choose those that I loved instead of me? Why do I have to live without them? Why?

Ahhhhh… but remember that promise I made. I’m never going to let you see that side of me. I won’t say that it doesn’t exist because it does. But just as my mom didn’t allow others to see her in pain… I cannot allow you to see me in mine. Well, at least I keep it to an absolute minimum population.

So don’t you call me a fake because I’m smiling in all my photos. And don’t you try to compliment me by saying I’m strong or brave or courageous. I am none of these things.

I am my mother’s daughter.

That is the only label I will never wiggle out of.

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The book is on again. But I’m going back to square one. If I’m going to do this… I’m going to do it right. Taking much longer than I expected and it’s much tougher than I predicted. But isn’t that the story of my life? Book galleys to a select trusted few should be ready in about 90 days.

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As promised, continued media links for Eddie Arguelles

http://www.themonitor.com/news/local/utpa-awards-posthumous-degree-to-cyclist-killed-in-edinburg/article_11097946-d8a9-11e3-86ef-001a4bcf6878.html?mode=jqm

http://www.krgv.com/news/bicyclist-struck-in-hit-and-run-receiving-posthumous-degree/

http://www.valleycentral.com/news/story.aspx?id=1044457#.U3ULDvldV8E

http://www.yourvalleyvoice.com/news/ride-of-silence-to-be-held-may-push-for-run/article_ed30afd4-db9c-11e3-82cf-001a4bcf887a.html

https://www.facebook.com/roycantu/media_set?set=a.10203787049420738.1073741834.1354313464&type=1

http://tablet.olivesoftware.com/Olive/Tablet/SanAntonioExpressNews/SharedArticle.aspx?href=SAEN%2F2014%2F05%2F13&id=Ar00108

http://www.krgv.com/news/bond-lowered-for-suspect-in-cyclist-s-death/

and what didn’t make the news… two of the ghost bikes that were to be dedicated at the Ride of Silence have been stolen.

 

#ideclare4lls – the squeaky voiced lobbyist from TEXAS

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , on May 9, 2014 by runmyssierun

I spent the last few days in Washington, D.C. with some pretty phenomenal cancer fighters – we made our voices heard on the Hill.  Y’all know that when someone else says it better than I do… I just let them. This post is taken from LLS Interim CEO Dr. Lou DeGennaro’s blog.

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With almost 400 cancer fighters declaring the end of cancer… I figured I would help you find me… I’m at the VERY top of the group. You’ll see three heads (I’ll be the third head) and mine is (if you imagine a clock, I’d be right at the 12) right smack at the top center

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After a group photo on the steps of Capitol Hill, where nearly 400-strong raised our hands and declared Cancer Ends With Me, (#Ideclare4LLS) we all – patients, survivors, families, volunteers, staff – dispersed to meet with our district legislators. Our objective: to urge our legislators in both Houses of Congress to support two critical pieces of legislation that would improve access to therapies for blood cancer patients.

 

One bill, HR 460, would limit cost-sharing for patients who require specialty tier drugs. The other, S1365, would allow a patient on Medicare to appeal if a prescription drug they need is placed on a non-preferred drug tier, meaning it comes with very high out-of-pocket costs. The law would allow patients to appeal to have the drug placed on a preferred drug list with lower coinsurance, if their prescribing physician deems it the patient’s only option.

 

While delivering our message, many advocates shared their stories with the representatives.

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“What’s the point of research if patients don’t have access to the therapies,” Ethan Zohn, star of Survivor: Africa, and a two-time Hodgkin lymphoma survivor, told Morgan Brand, an aide to Sen. Charles Schumer (D-NY).

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We were treated to two more special speakers during our morning session. Sadie Floyd is a 22-yer-old competitive drag racer who was diagnosed with acute lymphocytic leukemia when she was 2. She has committed to using her racing career as an outlet to get the word out about blood cancers.

“What LLS does on a daily basis is why I am alive today,” she said.

 

Rep. Anna Eshoo (D-CA) urged us on, saying “I love to be with advocates. You have power.”

 

We concluded our three day conference with a special performance at D.C.’s Union Station by Charles “Chip” Esten, a singer and actor, known for his role in the ABC drama series “Nashville.” Esten’s daughter is a leukemia survivor.

 

After the devastation of hearing their daughter had cancer at age 2, Esten said learning that there were treatments with a good chance of success turned their fears to hope. “That hope didn’t come from nowhere; it came from research and it came from funding that pays for research.” Today his daughter is 14.

** BUT Chip did something way more personal for ME, Lynda and Dezma:

 

As we gathered at Union Station, passersby stopped by to visit our Awareness Wall, placing stickers declaring Cancer Ends With Me and signing our petition to support the legislation discussed above.

 

Over the past three days of our conference, “Leading the Way to a World Without Blood Cancers,” we heard from renowned researchers, survivors, families and volunteers and shared best practices. We celebrated a major milestone – surpassing $1 billion in research investment – and we brought our cures and access agenda to the Hill. I leave feeling energized and knowing that all of the participants feel same the same – ready to keep fighting to make blood cancers a story of the past. LLS is making cures happen today, not someday.

Together – because it’s too hard to do this by yourself

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , on May 3, 2014 by runmyssierun

Being sick this last week has been a blessing. Laryngitis restricted me from mouthing off with emotion when ignorance was blaring and a lesson I learned a long time ago was you can never make sense to those who are senseless. Being stuck in bed gave me the needed rest to far exceed what I thought my body was capable of doing and this will be tested late this month. And best yet… I am convinced now more than ever that not hundreds but THOUSANDS of people around me see that change needs to happen and we are now all willing and able to do this TOGETHER.

Eddie Arguelles helped me become a cancer awareness advocate. Because of that, he helped me keep my promise to my mother and my Aunt Sissy who both lost their lives to cancer. Eddie had a cause of his own. He wanted to ride his bike with his family safely through the streets of the Valley. He was one of the biggest bicycle safety advocates I knew.

It was beyond tragically ironic how his life ended.

Now, his fellow cyclist friends and communities have come together to finish what he was not allowed to.

After all that I witnessed this week, there are no words in the English language that can capture the energy, the unity and the willingness to make the changes needed to run, ride and drive together here in the Rio Grande Valley of Texas.

Many of my local cities invited me to and my fellow cyclists to unify efforts to make running, riding and driving safer together. Incredibly progressive strides are being made in record time by multiple municipalities. Never before have I witnessed such a desire for needed change!

Many of my local cities invited me to and my fellow cyclists to unify efforts to make running, riding and driving safer together. Incredibly progressive strides are being made in record time by multiple municipalities. Never before have I witnessed such a desire for needed change!

 

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I had my cardiology exam today. I have a real good close relationship with all my doctors and their staff. They keep abreast of all my shenanigans and call me in before my big events to check up on me and make sure my body is running well.

As my nurse asked me to lift my shirt and place the stickies on my chest for the EKG, she mentioned how well my blog was coming along and how proud the staff was of all that I was doing and how far I had come. I couldn’t help but think how much better this scenario was as opposed to the mammogram and colonoscopy a few months ago.

Dr. Manohoran came in shortly afterwards and had told me it was time to do another stress test because of the irregularity that was found that first time around. *I was born with a genetic heart defect that he monitors quite often. He also noted that I was completely off my cholesterol medication and doing quite well.

He asked me about my trip to Washington DC and wished me well, scheduled my stress test to happen after my trip but before my triathlon. AND he didn’t leave the room without a “selfie” and his big bright smile.

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Doc Manohoran is ECSTATIC with my cardiac results!!! Can’t you tell???? That IS his #happy face!!! Seriously!!

If any of you all have made the decision to begin your own fitness journey, I hope you do it the right way with doctors who understand and encourage you the way mine have with me.

____________

 

And I’m not posting the latest media stories about Eddie today because my fellow cyclist friend who sat by me in court today said it better than I or any other journalist could. I am reposting his words:

I had a surreal experience earlier today at the bond reduction hearing for the man who killed my cycling buddy Eddie Arguelles. The judge opened the proceedings by asking: “Why are there so many people in my courtroom?” We then got about to the business at hand, which was the defense’s contention that the bail violated the defendant’s Eighth Amendment rights. The judge said something I found curious, namely that he was sure most of the cyclists and Eddie’s family members wanted to see instant punishment in this case. The judge argued that this, very human sentiment, violates our constitutional liberties.

I agree. The defendant deserves the chance to explain his actions which, given the circumstances, may in and of themselves represent a second level of punishment for the crime he purportedly committed. The defense argued that, lacking a toxicology report, there is no way to support the idea that the defendant was impaired at the time of the incident. The judge retorted that if he was not impaired, then the defendant’s actions (in trying to dispose of the remains of my friend) are inexplicable.

I looked at the defendant for some time today. He seemed almost pitiable. The proceedings seemed to be far above his ability to understand. He had a dull-witted, almost animalistic look to him. He seemed to represent humanity at its most basic level, a product of a self-indulgent and degenerate individualism that values sensual gratification at all costs. I saw nothing evil in the defendant, but I did discern something that is foisted on us all through popular culture, a bombastic braggadocio, an amoral dislocation based upon a fin-de-siècle mindset that unfortunately has at its end no promise of the brighter and more ethical future essential to creating a happy society. He is a symptom of a fundamental disrespect for the other that is spreading like a cancer in our society today.

None of this brings my friend back to life. None of this eases the immense sorrow the defendant has unleashed on the world. I wonder what can be done to change this, to save people such as the defendant before he becomes the terrestrial equivalent of an asteroid, lacking a moral sensibility and vaulting through space and time with little recognition of his impact on others.

 

Super Hero

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , on April 16, 2014 by runmyssierun

I was going back over my memory of CapTexTri from last year and then googled it to see what others had recorded from it just to make sure that I hadn’t missed something that others experienced. I found a news site that had a gallery of photos in a slide show that was pretty much in chronological order from start to finish.

http://www.kvue.com/news/slideshows/Photos-Capital-of-Texas-Triathlon-209357521.html?gallery=y&c=y#/news/slideshows/Photos-Capital-of-Texas-Triathlon-209357521.html?gallery=y&c=y&img=121&c=y

Seriously cool how I burst out into laughter as I saw myself on there!!! I had no clue I was in that slideshow. And it was perfect too because I had just talked to the TEAM about how important it was to me to always be caught smiling no matter how bad my body was hurting because my Momma never showed pain or fear to the world during her treatments – although I’m sure she was plenty scared and in more pain than I could ever imagine.

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This hasn’t been an easy road. Certainly not filled with rainbows and butterflies!!! Each day brings me face to face with people who scoff at my actions and even more who get a sick thrill to stab my back… but all of this has made me stronger. I may not be where I want to be but I’m much further away from where I hated to be.

I pray that this journey will lead me to where it is that I SHOULD be and I have faith that it will. What I do know from experience is that no success that has value was ever earned without sacrifice and hardship.

I shared with you this last weekend’s “hero” reference and what it meant to me. I remember naively saying to myself that nothing could top that… oh boy, was I wrong.

On Monday, shortly after I picked up my little boy from school, we went immediately to Barnes and Noble bookstore to get a book so that he could work on his project. While walking the aisles of the store, he pointed to a journal.

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“Look Mom!” he said.

“Wow! That’s cool! Who do you want to get this for?” I asked.

He looked at me with a puzzled face, “You! You’re Wonder Woman.”

God, please, forgive me. I know lately many times I’ve questioned why I am on this crazy journey and have questioned to what extent it is benefitting me and my family or to anyone for that matter… and why some of those who I care most about in this world have tried desperately to dissuade me from this path…

Thank you. Thank you, God.  Because at that moment in that store holding my hand, he looked at me the exact same way I looked at my Momma.

While I hardly feel like I am a Super Hero, I do feel that if anyone does feel this way about me, it is certainly just as I stated in my farewell speech as Miss Edinburg over twenty years ago, “I was chosen Miss Edinburg not because I was me but because of how my Mother taught me to be. I am a reflection of her. This crown belongs to her.”

She is the real Super Hero. If you feel that I am a hero or hear someone call me one, it is because you can see her in my eyes, in my heart and in my soul. And this is how I know she will always live in me.

Lynda is Dezma's mother.

Lynda is Dezma’s mother.

 

 

 

My good days

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , on April 14, 2014 by runmyssierun

“I don’t want them to pity me.” Sissy

She didn’t want people to pity her because of all she had been going through. She wanted to give them HOPE. And she’s probably going to be really upset that I’m including this in my blog for every Joe Blow in the whole wide world to read… but what very few people knew was that even after agreeing to go through experimental chemo cocktails with no success, shortly before she passed away, Sissy donated her body to science with hope that she would somehow still be able to help the world find a cure for cancer.

Somewhere out here in our world, right this very minute, there is a scientist out here closer to a cure because his or her medical journal has the results of a test that told the world that her body responded either negatively or positively to and gave that staff more insight because of her selfless choice. To me, that’s a real hero. Somewhere out here in this world, there’s a little bit of Sissy that still looks out for us.

Somewhere out here in our world, there are two precious boys (Nico and Sammy)who are likely going through those awkward growing up phases that boys go through – the time that I remember Donny the most (his awkward stage).  Donny loved those two boys so much, more than anything in the world! Life just dealt Donny too much at one time and he had a bad habit of locking up all his worries inside his head and he never coped with those pressures in a healthy way. With Momma and Sissy at MD Anderson with cancer, losing his pharmaceutical sales job, going through a divorce and dealing with debt growing at an exponential rate because of excessive shopping habits and worst of all… the emotional stress that all this did to him, I’m very happy that he prepared to take care of his boys after his death. To me, with all that he had to endure and still come out with his legacies taken care of, that’s a real hero.

And here… right here, I am challenged to push my body and mind to exceed limits I never knew existed. I am constantly questioning myself with “Is this how Momma would have done this?” It is now my responsibility to make sure I live out the rest of my life the way Momma taught me to. I hear her voice echo in my head over and over “el flojo trabaja doble”, “the early bird gets the worm” and “the squeaky wheel gets the grease”. You see, when I was young, I was quiet and shy and very insecure with just a handful of close friends. I was a quirky introvert… just like my dad. But I wanted soooo much to be more like my Momma. She was awesome! She was cool! She was beautiful! She was talented! She was smart! She was popular! She could do anything! Anything!!!

She loved her family. She worked hard. She played harder. And she was involved in EVERYTHING that was cool in this little community! Ok, let me correct that… she MADE everything that she was involved in super cool!!! Because of this, everyone wanted to be around her because she was just so much fun to be around so all the events and organizations she volunteered for were always successful.

So this week as Daddy and I remembered Momma and Donny and Sissy, I was predictably given more signs… and of course… I had to follow. From the flower arrangements I placed at their gravesites, to the Beatles songs that played randomly on the radio, to the movies that popped up on TV, to my two little lovebirds that made it “official” this week, to the contracts that fell through (likely Sissy’s doings since she hated gossip and drama and knew that it would probably blow up in my face later on with them), to the return of peace and love and happiness back into what remains of our little family, to being asked by the Leukemia and Lymphoma Society to lobby for cancer research funding and easier access to affordable treatment for cancer patients in Washington DC in a few weeks, to the odd number of elephant sightings in just one week (Momma collected elephants)… I knew Momma was here… right here by my side still pushing me and triggering that voice in my head guiding every move I made.

It was right after our TEAM’s open water swim practice, after I successfully did the group’s Mission Moment without crying (even talking about the anniversary of Momma’s and Donny’s death), when Sarah’s mom, Anita, posted countless photos and videos of the ABSOLUTELY STUNNING LAKE and our group doing a phenomenal job at swimming from dock to dock and then called us all “Super heroes”. To her, I am a hero.

Do you have any idea how special that is? To have a little girl who is fighting cancer call you a hero?!?!?!

I don’t have words for this feeling.

If you knew Sarah and Anita… If you were lucky enough to get one of Sarah’s hugs… and she called you a hero… You’d be speechless, too.

I had refrained from posting a lot this week because I didn’t want my blog to have an air of sadness or instigate pity as a result of Momma and Donny’s anniversaries. But the joke’s on me…

These were all pretty good days.

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Two years without Mimi

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , on April 8, 2014 by runmyssierun

https://soundcloud.com/maliavibes/nat-king-cole-smile-cover

It was two years ago today, right this very moment, that I crawled into bed with my Momma, held her hand, smoothed her hair back and whispered into her ear that it was ok to let go of us and stop the pain she was in. I remember hearing what the hospice nurses called the “death rattle”. I was the only one in the room with her in the end.

A few nights before, she had become quite antsy and restless. It was difficult for her to walk but she was adamant about going from her bed to the living room to watch TV on the couch. I lifted her up and walked her over, carefully holding her under her shoulders just incase she fell along the way. It was about 3:00 a.m. This would be the last time that she would have a conversation with me.

“I’m so sorry you have to see me go through this,” she said.

After I gathered my will and a bit of silence passed, I responded “I’m so glad it’s me you allowed to see you go through this.” I laid my head down on her frail bony shoulder as we sat on the couch together and she held me in her arms for the last time that night.

April 8, 2012, Easter Sunday, two years ago today… If you believe in the biblical story of Jesus Christ and know about the time when he began his journey of suffering, of crucifixion and death…it matches exactly the same time frame that Momma followed that day. I truly believe in the deepest part of my heart that she chose that day and that time to join her Lord and Mother Mary for that reason. I wish with all my might I could have faith and strength like hers.

I held her hand as she took her last breath.

No other honor in my life time can ever surpass that honor. I now live my life trying to smile like her no matter how hard it gets. I now live my life reflecting all that she taught me no matter what anyone else tells me. I now live my life like hers so that my children can feel the love that I felt for her.

I love you Momma.

The miles I run for you will always be Mimi’s Miles. Cancer picked the wrong woman.

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Play by play of BISD’s Everyone Can TRI

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , on April 6, 2014 by runmyssierun

You don’t just wake up one morning and tell yourself… “ehhhh I think I’m going to do a triathlon today.” You are either inspired to do one by watching the phenomenal results of someone you admire, are injured from another sport and through cross-training have decided to do one, are coerced, double dog dared or bullied into doing one, used to be an athlete at one time and have challenged yourself into becoming that person again, never have been an athlete and are now working on your bucket list, thought that this would be an interesting way to lose weight and get in shape or realized that this is connected to a cause that you are personally passionate about.

Clearly I have chosen the latter and least used… well, up until now.

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Yesterday, 15 members and even our coach of the Team in Training RGV TriTeam competed in the BISD’s Everyone Can Tri as a practice event to better ready us for the Capital of Texas Triathlon the last weekend in May. This would be my 5th triathlon in 13 months but for my teammates, it would for many of them be their first or second.

We all showed up early and set up our transition areas as close to each other as possible. A few of the girls had asked me to french braid their long hair like mine so that we can go from event to event without having to worry about ponytails whipping around or buns falling. Lucky for me and my cupid nature, I had fixed up my bike guru with my fellow Nike Women’s marathoner and CAP5k founder and convinced one to enter so the other followed. While I was inside the aquatic center french braiding her hair, he examined my bike and found that it had a flat back tire!!! Honestly, I don’t know how that could have happened. It was fine in the morning in the garage when I loaded it onto my car. It was fine when I arrived in Brownsville when I unloaded it from the car and into transition area. Again, lucky for me he was there because I would have never known and DNF’d at the first transition! Superstar triathlete Casey donated his tire tube to “Mimi’s” rescue. Together, those two boys were like my own personal NASCAR pit crew!!!

Lesson learned: ALWAYS CHECK YOUR GEAR and bring extra of everything and keep it in your car nearby. And make sure you pick your transition area near the nice experienced triathletes incase something like this happens again.

* Transition area – hang bike on rack, lay transition mat or towel under wheel of tire, place bike helmet with sunglasses nearest you with clips nearby (or already attached to bike), place running shoes behind them and on top of race belt with bib attached to it so that it doesn’t blow away in the wind. All other necessities should be in your transition bag placed furthest away from you on the mat just in case.

Knowing that each event for me is done to keep a promise to my mom, I become quite emotional at the start. So, I went for my private time and sat along the resaca’s edge to pray, remember and talk to Momma, Sissy and Donny. This week is afterall Momma’s and Donny’s death anniversary so it meant a lot to me. After I wiped away the tears, I rejoined the TNT group and found Jeanice. We gathered around in a circle as she led us in prayer and finished with an “Amen” and a loud “Go Team!”

After a few silly “before” team pictures, we all ventured into the aquatic center. We were sorted by sex, age group and swim pace and sat in the bleachers until it was our turn to enter the water. When my number was called out, I got really nervous. I was the ONLY female in that group.

“There must be something wrong. I’m the only girl here,” I said aloud unintentionally. The man by me looked me over in agreement and asked me “Do you swim every day?” I could tell what he meant by that and my inner voice (ya, you remember her) came out “No, not every day” and began to do my stretching exercises by the pools edge. But then Karen walked up and filled the space right before me… and that’s when it hit me… oh ya… something is definitely wrong if they’ve place my swim just under Karen “Ironman” Watt!!!! She nonchalantly giggled over her shoulder to me, “Sorry, I had to go to the ladies room.”

I am officially freaking out now. I am NOT this fast!!! I am placed in the wrong line up. I just know it! Please God! Please don’t let me look like a fool and hinder others from doing their best!!!

I tell the next person behind me “I think I’ve been placed in the wrong pace bracket so if you need to pass me, just tap my feet and I’ll move over so you don’t have to waste energy. I’ll let you pass.”

They must have thought I was the biggest goober ever!!!!

So there I was, heart racing a million miles a minute and jumping into the first lane with Karen right next to me. WHAT HAVE I DONE?!?!?!?

“Don’t you dare chicken out Myssie!” sarcastic inner voice is back and after me big time! “You’ve done this before a gazillion times in practice!”

“Ready and go!” the timer exclaims with her stop watch.

Oh my God! Oh my God! Oh my God!… and I swim and swim and swim…breathe… swim swim swim breathe… touch the edge… dunk under the lane line… WOW! That’s deep!… come up.. deep breath… sight myself… swim swim swim breathe… pass one guy… oh he’s struggling bad… poor fella… swim swim swim breathe… swim swim.. pass another.. sight. WHOA! this is shallow! Can I touch the bottom of the pool??? Focus you dingbat!!! Touch the edge of the pool and go under the lane line again, deep breath and swim… I end up passing about five swimmers total and passed only once. Yes!!!!! That’s what I’m talking about!!!!

I exit the pool up the ladder and know there is no way I’m looking like Pheobe Cates!!! I whip off my swim cap and favorite orange goggles, feeling confident and run to transition. I hear Vero yell out “GO MYSSIE GO!!!” and I know I’ve got a huge smile on my face. Just behind me is Wally, my bike guru. How did he do that??? He was like three swim groups after me!!! Phenomenal! I slam my helmet on my head with my sunglasses and slip my clips onto my still wet feet. I try my best to get out of transition as fast as possible and I’m right behind Wally. He mounts his bike at the line with ease and grace… I on the other hand have to stop, get my balance, carefully lift my leg… whoa.. whoooaaaa… ok, got it… and place it on the pedal, clip in and now go… ya, Wallito is long gone now. I yell out to my bike “Come on Momma, lets go!!!” and mash it hard. I barely see Wally on the horizon. BUT I can see him and so long as I can keep him in view that means I’m making really good time! So I give it all I got!!!

It feels great to be able to pass up cyclists now! My confidence in myself and my training is growing and is certainly reflected on my time. I don’t even want to lift up my hand to check what Garmin is recording. I mash it harder and harder. The course is a simple circle with all right hand turns so there’s little interaction with traffic however there still ARE a few idiot drivers that take the bike lane and use it as a right hand turning lane. I catch my breath as I see a car almost clip the cyclist before me. Thank goodness nothing happened!!! Wait… where’s Wally???? I don’t see him anymo….

Slumped over on the side of the road with his head bowing in defeat, I see him and his bike laying next to him. “What happened?” I yell out.

“I got a flat,” he responds.

Poor guy… he fixed my flat and then got one himself. I have the feeling someone gave me “ojo” and then went to him for fixing it. My pace goes down. But don’t worry… sarcastic inner voice takes good care of that and my pace comes right back up again. I pass a few more cyclists but one stood out. “Careful! I’m on your right!” I scream out to her. As I pass, she says “That’s a really cool bike you have! I love the orange! My husband’s bomb truck is that same color of orange.”

“Thank you!” I reply as best I can without sounding out of breath. “I race in orange in memory of my mother. It was her favorite color.” The look on her face was identical in respect as mine was when she told me of her husband’s truck.

click click

This. Is. Awesome.

The bike is my favorite part of the triathlon. There is something so exhilarating about it. The wind, the speed, the control, the freeness of it all… becoming one with a machine that cannot run without you being the engine that runs it… and I am finally comfortably speedy in it. I’m not as fast as I hope to be but I’m getting there and pushing myself more and more each chance I get.

And it’s over way too soon! Off I go and dismount at the line. I’m off to T2 now and I hear the cheers galore!!! The crowd calls my name out and without looking at anyone I hear Wally’s voice scream out “Go Myssie!!!” Seriously??? Again??? How does he do that? He shows up ahead of me at every single part of this race as if he’s been there for hours already and I never once see him pass me!!! He had a freakin flat!!! He must have a space/time continuum transfunctioner in his pocket!!

My feet are still wet and my tri suit is still dripping from the swim but because of time, I choose to slosh my wet feet once again into my Sauconys without socks knowing full well that I will get blisters by the time I enter mile three of the run. I carefully and slowly exit T2 to begin my run with brick legs. I remembered Stanley’s Tri just a month ago and how my legs just wouldn’t move so I was careful to get my bearing straight and do this one right.

Ok, ok… my legs are doing ok. My thighs are hurting a bit but not to the point where they’d stop me because of too much pain. I convince myself that I can push through this. And I do… but something happens in the first tunnel… it’s dark… I can’t see. Where am I going? Am I going to step in a hole and twist my ankle? Am I going to fall? Am I going to run into someone? Is someone going to run into me? Oh look! LIGHT!!! Whew! I’m through the tunnel now! And just as I exit the tunnel I see Ben as he yells out to me “Go Myssie!” and then tries desperately to yell out to Penny who is right behind me “Go Pe…. ” but that’s all the comes out of his mouth. Laura is just behind Ben and I hear her yell out a cheer to me as well. Unfortunately, I’m not as composed as they are and cannot return the cheer…

I. am. out. of. breath…. gotta stop. stop now.

seriously myss… just stop. walk. please. walk..

Now, in hindsight… as I type this out.. I can honestly tell myself that I was not in pain. My body could have continued to run. It was not hurt. I was simply out of energy. I lost my WILL. I lost my ganas in that tunnel. I stopped. I gave up.

Penny passed me. Cat passed me. I gave up on myself and I had no good reason to do so.

I could feel the blisters forming on both my feet but even then, the pain of the blisters weren’t enough to stop me. It was me… my core self that stopped me. I allowed my negative self to defeat all my hard work.

I knew Karen was ahead of me because she’s super fast and was ahead of me in line up. I knew Laura had passed me in the swim and was the only one that had passed me. No one in my age group passed me on the bike. I was in third place up to this point and I gave up. How could I do this to myself?

This is what I need to conquer quickly before CapTex. I need to find out why I let myself down and never allow that to happen again.

It was at the water stop that I gathered my senses again but by then it was too late. I grabbed two paper cups. I drank one and poured the other over me. BOOM! There! That’s what I needed. A wake up call!!!

In the anger of my self defeat, my feet challenged my head and heart and took matters into their own toes.  They led the way and never stopped after that moment. Once I passed under the bridge and heard the crowd, my feet would NOT allow me to stop no matter what. In fact, they went faster and faster and faster. I turned the last corner and hear Vero yell out one last time “Go Myssie Go!!!” and soon after that the crowd ensued with deafening cheers. You have nooooo idea how much I needed this and it pumped me up just the way I needed it. I finished but knew I had let myself and my training down.

Coach W came over and put her arms around me and asked “How’d you do?”

“I did well. I felt strong in my swim and in my bike but I’m disappointed in my run.” Without any elaboration, the look on her face showed me she understood. My face has a way of showing all my emotion behind it in every wrinkle. She must have known I was beating myself up about it already and she wasn’t going to add fuel to the fire. She gave me a hug.

It was right about then that Alex, my triathlon buddy all this last year had come over to me with the most enormous glow of pride on her face. She reflected on how just a year ago she and I had finished OUR first triathlon (Stanley’s Tri) and this entire group around us that had been cheering us on then had today successfully finished their first triathlon. The both of us stood there with huge smiles on our faces and so proud of the newbie triathletes we inspired.

Some didn’t know how to swim. Some hadn’t ever ridden a bike. But NOTHING stopped them. Not even their fear. 10 weeks later… they are now TRIATHLETES!!!

And then I stood there as the awards were handed out and I knew I missed out on the closest opportunity I had to finally podium… and looked at my teammates of new triathletes and it hit me… courage. They all had courage.

Somewhere along the way… I lost my courage. I must find it.

Tuesday is Momma’s death anniversary. Friday is Donny’s. If any time was the right time to find courage to continue… it’s now and for them.

I was asked a good question yesterday.

“Do you want to do this for cancer and just finish or do you want to do better?”

My response is: Why should it be one or the other? Why can’t I aspire to do both? Do this for cancer AND do better!!!

 

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Everyone Can Tri

Posted in Uncategorized with tags , , , , , , , , , , on April 6, 2014 by runmyssierun

I don’t really have a lot of time to summarize the event from today (I’ll do that tomorrow) but I do feel compelled to share the most memorable moment of today with you…

Shortly after I crossed the finish line, Alex – my roommate from the Herothon in San Antonio that I coerced into joining the Just Tri It program with me in just one weekend last year, leaned over and quietly whispered into my ear:

“When we did our first Tri last year, all these people were cheering for us and now they did their first Tri!!!”

Two crazy girls on a whim inspired 18 more to do a triathlon with them. Whodathought?!?!?! Anything can happen. And anyone can do it. Well, that is if you have these awesomely crazy positive people around you to push your limits!!!!

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Suddenly I see

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , on March 31, 2014 by runmyssierun

https://soundcloud.com/jessica-wagner/14-suddenly-i-see-kt-tunstall

What a week!!!!

I’ll start off with the biggest news ever… oh wait… IT’S ALL THE BIGGEST NEWS EVER!!!

The Inaugural RGV CAP5k (CAP is an abbreviation for Colonoscopy Assistance Program – we provide financial aid to those high risk patients who reside in the Rio Grande Valley and cannot afford to pay for a colonoscopy) was a GRAND success!!! When our little committee of Laura, myself, Alex, Adriee and Maritza all got together for coffee to plan this 5k fundraiser, we nonchalantly said “expect about 50-100 race participants”. With all the community support and sponsors, we had over 300 race participants!!!  We’re still tallying total funds and can’t wait to begin disbursing them to those who need it.

RGV CAP5k

The Health Nut’s promotion of “The Myssie Shake” was fun and viral!! It got people out there to drink a healthy shake instead of a Whatasized #2. Some people had never had a shake and it was refreshingly comical to witness their reactions. We probably didn’t raise millions of dollars from this promotion but it got people to start making healthier choices that to their surprise actually tasted pretty good!!!

While at the CAP5k packet pick up, I got a gazillion urgent messages from the LLS office. The Leukemia and Lymphoma Society asked if I would lobby and testify for cancer research funding in Washington DC for them!!!! What an honor!!! I still need more details but to be honest, even if it helps just ONE PERSON… I’m all in!!!

Training this weekend was a complete flop for me. I had the race on Saturday morning and a few personal issues that stopped me from attending my practices and scheduled workouts and I have a feeling that the remainder of this season will be a number of stumbling blocks before each one. I’m going to have to be creative and adamant about sticking to my plan of attack for CAPTEX.

Remember, if you want to participate in the Capital of Texas Triathlon the last weekend of May, use the code CAPTEX1402 in your registration and you’ll get 10% off the cost of registration. You’re welcome! And thank you!

Best part of this weekend? Walking the CAP5k course before sunrise and feeling the awesome cool winds from my weather angels and following the “orange signs”.  I knew in my heart at that very moment… Momma would have been happy. 

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MARTIN MEDINA

Posted in Uncategorized with tags , , , , , , , , , , , , , , on March 26, 2014 by runmyssierun

I’m going to do something different for today’s entry. I’m not entitling this post with the name of a song. I’m not going to gracefully dance around the severity of a taboo topic. I’m gonna slug you in the gut with the story of an incredibly amazing person and hopefully move you and this whole community into action… because the worse thing you can do is absolutely nothing.

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A few years ago, I worked for a studio with several different television and radio stations. I loved my job mostly because I was given the ability to befriend so many incredible clients who entrusted me with their business and event marketing/promotions. One morning my co-worker had announced that she was going to sign up AHSTI as a client. However, that afternoon I received a phone call from a soft spoken nice gentleman asking to meet with me to plan out a promotion for his event – the same organization that my co-worker said she would sign up. Now, the way that my office worked was that if you called out your possible client that morning… it was the equivalent of calling “shot gun” for the front seat. She called dibs.

I met with him and went over a few ideas and he quickly blurted out “We wanted to work with you because you are trusted and don’t BS anyone.”  I’ll never forget that. He could tell I had great ideas and he could tell I was worried about something.

I admitted that I had just received some worrisome news about my mother who was at MD Anderson at the time. He let me vent and then we planned one of the most successful events that AHSTI ever had together.

I had never fought for a client before. I’m so glad I did.

So that’s my side of the story and how this friendship began.

Here’s his.

http://www.themonitor.com/life/valley_life/palmview-resident-turns-cancer-diagnosis-into-plan-for-nonprofit/article_218773e2-1417-11e3-9ba9-0019bb30f31a.html?mode=jqm

Martin grew up poor and knew the challenges that this area had to overcome to attain a home, an education and a good life. He dedicated himself to helping the poor get homes through the local Affordable Homes program. And he was really good at it!!!

And then one day, out of the blue, I got a phone call. I was in a meeting so I couldn’t answer it but I did see the caller ID and was a bit puzzled when I saw his name. About two hours later, I was able to listen to his message.

I dropped the phone and my heart sank. He told me that he was diagnosed with Stage III Colon cancer, was weak, needed help and wanted to partner up with me on some ideas that he had and to call him back. He knew I understood what he was feeling. He knew I understood how expensive this disease is. He knew I understood.

I held the phone in my hand for a good thirty minutes. I couldn’t call him back. I knew that if I spoke to him, I’d break down in tears and that’s not what he needed from me. He needed positive reinforcement. He needed someone strong. He needed someone I could not be at that time. I was so distraught. He was so young! How does this happen? Why does cancer strike the good ones? Why him? He has so much to offer with his good heart and his youth and his ambition and his… (the list went on and on)

Long story short.. I never had the guts to call him back. I didn’t trust myself. I cried.

Truth is, he never needed me or my support. He dug in his heels, went through treatment and continued with his plan.

Now, if any of you have gone through surgery, radiation and chemo… you KNOW how that knocks you down. This guy did it, got knocked down and used that down time to create a non-profit for others who are going through the same thing to receive a revolving loan to pay for expenses related to dealing with cancer treatment.

Seriously, who does that? Who creates a revolving loan fund for OTHER people to utilize when undergoing cancer treatment, after they’ve lost their job, their income and still have mortgages to pay, utility bills, travel expenses, children’s expenses, car payments, insurance, yada yada yada????

MARTIN MEDINA DOES that’s who.

So when you come home and complain about having a hard day at work and plop down on your couch in your home with a roof over your head and a big screen TV and dinner in front of you with the air condition/heater blasting, able to put in your crossfit workout or daily jog and a warm shower to ease you… think about what you did today and count your blessings. Ask yourself… WHAT DID YOU DO YOU HELP THE WORLD TODAY?

Were you inactive? Were you indifferent? Were you silent?

What excuse are you mustering up in your head to give me? I’m not going to buy it anyway. Wake up. Do something. If you can’t think of something to do, to say, to be… then help Martin Medina.

This is his facebook page. Become his friend and offer your help, your talent, your voice, your anything… just whatever you do, don’t do NOTHING.

 

No matter what life tosses our way, there are always those individuals who will take their given situation and turn it into something positive. Martin is one of those individuals. Despite his battle against cancer, he took time this weekend to introduce his friends to each other in efforts to create a foundation to help people in need at a local level. Thank you Martin for your inspiration, our world can use more people like you. We love you dearly and are here to support you any which way we can. We pray that you continue to recuperate and return stronger than ever. Si se puede!

“No matter what life tosses our way, there are always those individuals who will take their given situation and turn it into something positive. Martin is one of those individuals. Despite his battle against cancer, he took time this weekend to introduce his friends to each other in efforts to create a foundation to help people in need at a local level. Thank you Martin for your inspiration, our world can use more people like you. We love you dearly and are here to support you any which way we can. We pray that you continue to recuperate and return stronger than ever. Si se puede!” –Lori Michelle Ruiz

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This is Martin Medina surrounded by his friends who contacted me. Together, we'll be organizing a RAVE RUN, concert and dinner to help him with HIS expenses and establish his revolving loan fund and nonprofit to help others.

This is Martin Medina surrounded by his friends who contacted me. Together, we’ll be organizing a RAVE RUN, concert and dinner to help him with HIS expenses and establish his revolving loan fund and nonprofit to help others.

THANK YOU LONESTAR NATIONAL BANK FOR SETTING UP AN ACCOUNT FOR MARTIN SO THAT ANONYMOUS DONATIONS CAN BE MADE TO HIM!!!! *I’ll set up a link here shortly so that people can donate here online from my blog to him.

 

God Bless you Martin!