Archive for leukemia and lymphoma society

#ideclare4lls – the squeaky voiced lobbyist from TEXAS

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , on May 9, 2014 by runmyssierun

I spent the last few days in Washington, D.C. with some pretty phenomenal cancer fighters – we made our voices heard on the Hill.  Y’all know that when someone else says it better than I do… I just let them. This post is taken from LLS Interim CEO Dr. Lou DeGennaro’s blog.

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With almost 400 cancer fighters declaring the end of cancer… I figured I would help you find me… I’m at the VERY top of the group. You’ll see three heads (I’ll be the third head) and mine is (if you imagine a clock, I’d be right at the 12) right smack at the top center

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After a group photo on the steps of Capitol Hill, where nearly 400-strong raised our hands and declared Cancer Ends With Me, (#Ideclare4LLS) we all – patients, survivors, families, volunteers, staff – dispersed to meet with our district legislators. Our objective: to urge our legislators in both Houses of Congress to support two critical pieces of legislation that would improve access to therapies for blood cancer patients.

 

One bill, HR 460, would limit cost-sharing for patients who require specialty tier drugs. The other, S1365, would allow a patient on Medicare to appeal if a prescription drug they need is placed on a non-preferred drug tier, meaning it comes with very high out-of-pocket costs. The law would allow patients to appeal to have the drug placed on a preferred drug list with lower coinsurance, if their prescribing physician deems it the patient’s only option.

 

While delivering our message, many advocates shared their stories with the representatives.

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“What’s the point of research if patients don’t have access to the therapies,” Ethan Zohn, star of Survivor: Africa, and a two-time Hodgkin lymphoma survivor, told Morgan Brand, an aide to Sen. Charles Schumer (D-NY).

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We were treated to two more special speakers during our morning session. Sadie Floyd is a 22-yer-old competitive drag racer who was diagnosed with acute lymphocytic leukemia when she was 2. She has committed to using her racing career as an outlet to get the word out about blood cancers.

“What LLS does on a daily basis is why I am alive today,” she said.

 

Rep. Anna Eshoo (D-CA) urged us on, saying “I love to be with advocates. You have power.”

 

We concluded our three day conference with a special performance at D.C.’s Union Station by Charles “Chip” Esten, a singer and actor, known for his role in the ABC drama series “Nashville.” Esten’s daughter is a leukemia survivor.

 

After the devastation of hearing their daughter had cancer at age 2, Esten said learning that there were treatments with a good chance of success turned their fears to hope. “That hope didn’t come from nowhere; it came from research and it came from funding that pays for research.” Today his daughter is 14.

** BUT Chip did something way more personal for ME, Lynda and Dezma:

 

As we gathered at Union Station, passersby stopped by to visit our Awareness Wall, placing stickers declaring Cancer Ends With Me and signing our petition to support the legislation discussed above.

 

Over the past three days of our conference, “Leading the Way to a World Without Blood Cancers,” we heard from renowned researchers, survivors, families and volunteers and shared best practices. We celebrated a major milestone – surpassing $1 billion in research investment – and we brought our cures and access agenda to the Hill. I leave feeling energized and knowing that all of the participants feel same the same – ready to keep fighting to make blood cancers a story of the past. LLS is making cures happen today, not someday.

Super Hero

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , on April 16, 2014 by runmyssierun

I was going back over my memory of CapTexTri from last year and then googled it to see what others had recorded from it just to make sure that I hadn’t missed something that others experienced. I found a news site that had a gallery of photos in a slide show that was pretty much in chronological order from start to finish.

http://www.kvue.com/news/slideshows/Photos-Capital-of-Texas-Triathlon-209357521.html?gallery=y&c=y#/news/slideshows/Photos-Capital-of-Texas-Triathlon-209357521.html?gallery=y&c=y&img=121&c=y

Seriously cool how I burst out into laughter as I saw myself on there!!! I had no clue I was in that slideshow. And it was perfect too because I had just talked to the TEAM about how important it was to me to always be caught smiling no matter how bad my body was hurting because my Momma never showed pain or fear to the world during her treatments – although I’m sure she was plenty scared and in more pain than I could ever imagine.

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This hasn’t been an easy road. Certainly not filled with rainbows and butterflies!!! Each day brings me face to face with people who scoff at my actions and even more who get a sick thrill to stab my back… but all of this has made me stronger. I may not be where I want to be but I’m much further away from where I hated to be.

I pray that this journey will lead me to where it is that I SHOULD be and I have faith that it will. What I do know from experience is that no success that has value was ever earned without sacrifice and hardship.

I shared with you this last weekend’s “hero” reference and what it meant to me. I remember naively saying to myself that nothing could top that… oh boy, was I wrong.

On Monday, shortly after I picked up my little boy from school, we went immediately to Barnes and Noble bookstore to get a book so that he could work on his project. While walking the aisles of the store, he pointed to a journal.

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“Look Mom!” he said.

“Wow! That’s cool! Who do you want to get this for?” I asked.

He looked at me with a puzzled face, “You! You’re Wonder Woman.”

God, please, forgive me. I know lately many times I’ve questioned why I am on this crazy journey and have questioned to what extent it is benefitting me and my family or to anyone for that matter… and why some of those who I care most about in this world have tried desperately to dissuade me from this path…

Thank you. Thank you, God.  Because at that moment in that store holding my hand, he looked at me the exact same way I looked at my Momma.

While I hardly feel like I am a Super Hero, I do feel that if anyone does feel this way about me, it is certainly just as I stated in my farewell speech as Miss Edinburg over twenty years ago, “I was chosen Miss Edinburg not because I was me but because of how my Mother taught me to be. I am a reflection of her. This crown belongs to her.”

She is the real Super Hero. If you feel that I am a hero or hear someone call me one, it is because you can see her in my eyes, in my heart and in my soul. And this is how I know she will always live in me.

Lynda is Dezma's mother.

Lynda is Dezma’s mother.

 

 

 

Suddenly I see

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , on March 31, 2014 by runmyssierun

https://soundcloud.com/jessica-wagner/14-suddenly-i-see-kt-tunstall

What a week!!!!

I’ll start off with the biggest news ever… oh wait… IT’S ALL THE BIGGEST NEWS EVER!!!

The Inaugural RGV CAP5k (CAP is an abbreviation for Colonoscopy Assistance Program – we provide financial aid to those high risk patients who reside in the Rio Grande Valley and cannot afford to pay for a colonoscopy) was a GRAND success!!! When our little committee of Laura, myself, Alex, Adriee and Maritza all got together for coffee to plan this 5k fundraiser, we nonchalantly said “expect about 50-100 race participants”. With all the community support and sponsors, we had over 300 race participants!!!  We’re still tallying total funds and can’t wait to begin disbursing them to those who need it.

RGV CAP5k

The Health Nut’s promotion of “The Myssie Shake” was fun and viral!! It got people out there to drink a healthy shake instead of a Whatasized #2. Some people had never had a shake and it was refreshingly comical to witness their reactions. We probably didn’t raise millions of dollars from this promotion but it got people to start making healthier choices that to their surprise actually tasted pretty good!!!

While at the CAP5k packet pick up, I got a gazillion urgent messages from the LLS office. The Leukemia and Lymphoma Society asked if I would lobby and testify for cancer research funding in Washington DC for them!!!! What an honor!!! I still need more details but to be honest, even if it helps just ONE PERSON… I’m all in!!!

Training this weekend was a complete flop for me. I had the race on Saturday morning and a few personal issues that stopped me from attending my practices and scheduled workouts and I have a feeling that the remainder of this season will be a number of stumbling blocks before each one. I’m going to have to be creative and adamant about sticking to my plan of attack for CAPTEX.

Remember, if you want to participate in the Capital of Texas Triathlon the last weekend of May, use the code CAPTEX1402 in your registration and you’ll get 10% off the cost of registration. You’re welcome! And thank you!

Best part of this weekend? Walking the CAP5k course before sunrise and feeling the awesome cool winds from my weather angels and following the “orange signs”.  I knew in my heart at that very moment… Momma would have been happy. 

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You’re not good enough

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , on March 15, 2014 by runmyssierun

https://soundcloud.com/bloodorange/youre-not-good-enough

Sooooo I had an interesting conversation the other day with an extremely experienced super athlete. Honest to God, I truly tried to hold my temper and sarcasm but I know it didn’t take long for my squeaky high pitched voice to mimic that of Karen Walker’s.

“Face it Myssie, you aren’t getting any younger. Your times are not going to get better. If my …. times can’t get better, then yours won’t either.” – I’ll leave their name out of it.

Ok… so maybe I am old. OK… so maybe I’m not a naturally gifted athlete. OK… so maybe my times will never get better.

What in the world makes someone think that it’s ok to squish the hope of someone else just because THEY can’t do it themselves? Their light will not shine any brighter by trying to dim someone else’s. I would NEVER tell someone that they can’t climb a mountain just because I haven’t climbed a mountain.

People like this drive me nuts! Now, I’d like to think that I’m a pretty positive and strong person but if people like this go about their day ranting to anyone gullible enough to believe just one ounce of this shhhhiii….tttuuuffffff, well then no wonder we have so many emotionally damaged people around us!!! Seriously, if you can’t say anything nice, don’t say anything at all! I really don’t care if it’s true or not. I love the Rotary 4-way test:

1. Is it the truth? 2. Is it fair to all concerned? 3. Will it build goodwill and better friendships? 4. Will it be beneficial to all concerned?

Taste your words before they leave your lips.

Whether you believe it’s coincidence or another sign from my guardian angels around me.. this was the very first article that was on my Klout (p.s. have you added me as your “influencer” on the subject of triathlon and/or cancer on Klout? – please do) feed this morning when I logged in:

http://games.crossfit.com/article/keeping-fit-69-mirlene-oconnell

She’s older than I am. However, just like me… she signed up for a triathlon before even knowing how to swim! AND SHE DID IT! And so did I! And we’re OLD! She finished last in her age group last year and hopes to improve. I finished 3rd to the last in my age group and I hope to improve.

I’m going to be real… I know I will not podium this Sunday at Stanley’s Triathlon. The age group that I am in have some incredibly seasoned triathletes with surreal times. In fact, the woman who won the entire women’s category was in my age group. I believe in my heart of hearts that my time WILL improve but still will likely not be enough to medal. And, trust me, I’m ok with that. Here’s why…

For the first time in my Team in Training history, I will not be using my “Mimi” – my custom Felt bike. I rode “Neo” – the Cervelo that was donated to me recently – for the first time a few days ago and felt very fast. I rode the course on both bikes and actually felt better in Neo. I will practice mounting and dismounting the bike tomorrow afternoon but even with the practice, let’s be honest… every athlete knows better than to use ANYTHING new right before a race. This is a gamble for me. But I’m also in the mindset that I am using Stanley’s Triathlon as a practice tri for CapTexTri in May. If ever there was an opportunity to see if I can handle Neo under fire, it’s on Sunday.

I am officially one of the "gang" now, eh?  Honored but I'll always prefer the BRC. ;)

I am officially one of the “gang” now, eh? Honored but I’ll always prefer the BRC. 😉

IF I do well, I can guarantee it will be because of the time made up on the bike, the experience and training all this year, and the amazing positive encouragement from my fellow peers who will likely be cheering me on along the streets of the course. IF I don’t do well… it’s because the jerk was right. I’m too old and my time won’t ever get better. I’m not getting any younger afterall.

Ahhhhh but here’s the reality of it all… regardless of the outcome, I will continue to TRY to make myself better. Because what TRULY matters is NOT whether or not I make it onto that podium and it is NOT even about my time getting better, or keeping cadence king or having proper swim form or running chi… it’s about someone who is scared to death right this moment because they just received the news that they have cancer.

I don’t give a damn how old I am… I’m gonna fight for them.

Sarah doesn't care how old I am. She just wants to live a cancer-free life.

Sarah doesn’t care how old I am. She just wants to live a cancer-free life.

These are the Cyclepaths exactly one year ago at our very first triathlon. Only 2 of us in that photo did not participate in that triathlon because we did our first triathlon the very next day. One year later, all but 3 of us pictured there have completed at least a Half-Ironman. We are all one year older... and all their times got better.

These are the Cyclepaths exactly one year ago at our very first triathlon. Only 2 of us in that photo did not participate in that triathlon because we did our first triathlon the very next day. One year later, all but 3 of us pictured here have completed at least a Half-Ironman. We are all one year older… and all their times got better.

My favorite mistake

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , on March 6, 2014 by runmyssierun

Last night Jean Gearhart, the woman who pushed me further than I ever expected someone other than my own mother could, broke down into tears and she surprised me in front of my fellow Team in Training alumni marathoners, survivors and current triathletes. However, she mentioned something in error.

She said between sobs “She did it all by herself…. and it shows her dedication to the cause.”

But truth be told.. I was never by myself. I had more people push me, support me, run with me, swim with me, bike with me, donate to me, advocate for me, spread the word, encourage me, give of themselves so that I could move forward to that very first crown. Oh! And add a few stubborn and over protective angels to the mix, too!!!

If you are reading this on a computer screen, look at the links at the top right side of the screen. Those people never once left my side. NEVER.

Triathlon is a very individual sport.. true. But I was an exception. I was never ever alone. This triple crown is not mine.

This triple crown is OURS.

Dezma, today is yours baby. One year. My heart breaks for her friends and family. I know that pain all too well. You’d think by now I would know what to say. Still at a loss.

Click to access LLS_BCAM_infographic.pdf

The Warrior inside her

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , on February 5, 2014 by runmyssierun

The very first Team in Training Triathlon Team practice happened on Saturday. We ran just a couple of miles. I don’t really like this about me at all anymore but I’ll be honest. I didn’t really think that was a workout for me. I run a mile as a warm up and another mile as a cool down regularly.

Isn’t that amazing???? I feel so pretentious, proud and guilty at the same time for this!!! Whodathought a few years ago that I, the middle-aged overweight anti-gym bunny sweat is icky girl, could run a whole mile without stopping?!?!?!?

And then Monday came around… it was dark, cold and drizzling rain. I wasn’t really prepared for the wetness so I wore all the wrong stuff. Thank goodness I carry extra gear in my trunk and had my trusty orange wind and water resistant jacket from German!!! It made all the difference in the world.

Coach “W” called out our workout to the group, “Lets go 4 to 5 times over the hill. That should be about 2 miles.”

Ugh! 2 miles again!!! *ya, that’s my attitude that needed some spanking

Off we went! I was, as always, the last to run up. I’m ok with that. I couldn’t hear my music and the rain was accumulating all over me… especially in my hair!!! It made the run more uncomfortable than I expected. But wait… oh… oh no… it’s not the rain that made this uncomfortable for me… it’s my… oh … oh noooooo!!!

Boom! I sprinted across that hill and luckily yelled out to Sarah’s mom who was cheering me on and trying desperately to take a photo of me – I couldn’t smile. “Tell Coach that I need to go to the bathroom! I’m going to Embassy Suuuuuuiiiiiites!!!!”

Whew!!! I made it just in the nick of time. TMI?

Sorry. I’m candid and tell it like it is. Sometimes when you run… pee happens. That’s the truth.

I returned back to the gang and continued my run and obviously the last one to run in because of my kidney explosion.

We gathered back together in a circle to stretch. Coach “W” then said something that snapped me back into reality…

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She said that along with coaching us through these next few months of physical training, she would also incorporate some mental training. “W” clenched her fists and pounded her heart as she said “When I speak of ‘spirit’, I don’t mean religion… I mean the inner spirit in all of us. I have a warrior in me.”

Our coach is a cancer survivor. She told us of a childhood memory she had of her being a warrior and how she ran around in her backyard from one side of the fence to the other as her dogs followed her and she imagined them being wolves. She giggled for a while as she reminisced. “We all have a warrior inside of us.”

“We need to remember WHY we are doing this.”

BLAM!!!

2 miles is 2 miles… and it actually ended up being 3! I must never scoff at that ever again. It wasn’t that long ago that I could go only one block. It wasn’t that long ago that it dawned on me that my Momma would never be able to run a mile… ever. That’s when it came back to me. Remember WHY I’m doing this.

So on today, World Cancer Day, I remember. I will likely need reminders again as I am human and get wrapped up in the nothingness of my life. It takes me a while to recognize these little signs but when I do… wow. It’s pretty powerful.

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Sole Survivor

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , on January 25, 2014 by runmyssierun

I spent Wednesday afternoon and Thursday morning with over 200 young ladies at a nearby local high school. The organizer had called me up after receiving some recommendations from the other speakers she had lined up that week as well. The week long seminar was designed to empower these young female students with leadership and life skills by providing a personal testimony of our own examples and an inspiring speech. Honestly, I was floored.

Me? Wow!

The topics divided up into the various days were: education and awareness, physical and mental fitness, health and beauty

I had a blast. Of course, I got choked up when I spoke to the girls about a few parts but made sure to emphasize the silver lining of it all… after all, it was supposed to be an inspiring talk – not a sob story and not a braggart story – but a story that told them that there will be times in your life when you’ll be knocked down to rock bottom and you’ll have to find the courage within yourself to get yourself back up. It’s a story about hope, determination, love, stewardship, sacrifice and faith. And when someone say’s that you can’t do something, turn around and tell them “watch me”.

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I was a little —- no—- I was really very very very nervous in the beginning. I feel so much more comfortable typing my feelings and experiences on a computer rather that talking about them under a spotlight in front of a couple hundred strangers staring at me. But I needed to say it out loud. To them. For me.

I cried. I warned them about my crying even before I started so I guess I was covered on that but I cried a lot. There was one time that I had to stop, wipe my tears and take a few deep breaths… I’m sure the silence was awkward for them. And I managed to  struggle through with two ovations to boot!

My story was unique in that it touched each one of the topics over the several days. My story was NOT unique in that EVERY speaker began the same way and ended the same way and each of us stressed to the girls that no matter what adversity life gives you, keep going after your dream.

“The question is not Who’s going to let me. It is Who is going to STOP ME!”

There was a defining point in my speech where all their eyes were fixated on me. Come to think of it… It was quite the defining point in my life as well.

It wasn’t planned that way, at least no one told me about it if it was, but each speaker began their speech with “I am no different from you. I am not any more special than you.” We were all from this community. We were all from humble upbringings. We all had similar values – family, education, God, health, community. We had all been given opportunities at one point or another and it took sacrifice to receive those opportunities. We had all had a visit and tour around rock bottom. We all lived to tell the tale. And we all did pretty good for ourselves.

Sound familiar? Maybe a little like you?

Good!

I know my story has a lot of death in it. I try very hard to let people know about the experience of death, witnessing it, dealing with it and doing all you can to move forward through it in a healthy way without making it sound like I’m dwelling on it.  Yes, it has been very very difficult but I also had to remember that I have two boys that still need me healthy, happy and alive for them. So when people connect to my story, I know deep inside that they have a rock bottom experience as well. That’s when I turn it on.

One girl raised her hand to ask a question but immediately got incredibly timid when I asked her to repeat it because I couldn’t hear her. She repeated it again but even softer and then shook her head and said “nevermind”.

I knew immediately… this was an important question. So, I didn’t back down. I stayed there until she said the question aloud again for everyone to hear. It was important for everyone to hear this. No question was silly, stupid or unworthy… especially this one.

“After all you went through, did you go to therapy?”

My reply was:

“Yes, I went to therapy. I still go to therapy. Running has become my therapy. There are some days when I train in groups for events. And there are some days when I run by myself for this very reason. I need to be alone with my thoughts, with myself and I pray when I run. It’s ok to feel sad sometimes. But we HAVE to find it within ourselves to get ourselves out of it and find happiness again.”  I wish you could have seen their faces when I told them it was ok to feel sad sometimes. It was as if I had given them permission to be normal.

It’s been proven that physical exercise helps us cope and reduce our stress levels.  Clearly I could have gone the other way and fallen quickly into the rabbit hole of depression. But I didn’t. Running saved me. Team in Training saved me.

I am a sole survivor.

I just spoke to the most amazing group of young women and my heart melted when a swarm of them caught me as I was leaving. They each asked me to take individual photos with them and spoke to me about their own experiences with cancer and their own "impossible goals" that they want to achieve. Honored and humbled and a smile from ear to ear!!!

I just spoke to the most amazing group of young women and my heart melted when a swarm of them caught me as I was leaving. They each asked me to take individual photos with them and spoke to me about their own experiences with cancer and their own “impossible goals” that they want to achieve. Honored and humbled and a smile from ear to ear!!!

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I lost my best friend to Non-Hodgkin Lymphoma just a few months before he was to walk with me down the isle at my wedding. His name was Rodney Perez. He bravely battled cancer for 5 years. He died at age 24.

I lost my grandmother, Lorenza “Lencha” Cavazos and grandfather, Narciso Cavazos to Leukemia.

I lost my baby brother, Donny Cardenas, not from cancer but from what cancer does to loved ones and caregivers… what no one talks about, the stress that the family deals with while caring for their loved ones like financial stress and emotional stress. He felt he had to take on this burden by himself. He dealt by eating all the wrong things, drinking, locking himself up from the world. He had a heart attack at age 38.

I lost my Aunt Sissy – the woman who raised me while mom worked and went back to school. Leukemia stole her from us and her three years of retirement that she worked all her life for.

I lost my beautiful close friend Jana Miller. A brilliant doctor, fun loving and kind hearted. She was diagnosed at stage IV during her 3rd year of med school. She finished, practiced and became an active member of the community. Few people knew she lived ten years with cancer. Her smile fooled everyone.

I lost my Momma. On Easter of this last year. Exactly one year after we lost my baby brother Donny. Eight months after losing her sister Sissy.

I’m sorry. I still can’t talk about my Momma.

I joined Team in Training because I thought that if the world and God saw how hard I was trying to do this impossible run… then maybe, just maybe, the world and God would make the impossible cure possible.

And when I ran my first full marathon in San Diego, just a couple of months after my Momma died, a woman yelled at me – when I wanted to quit – I was at mile 22 – she said “You are running for the treatment that has kept me alive! Please, don’t stop!”

Thats when I understood that hundreds, thousands of strangers for years before this had run for the treatment that allowed my mother to spend 6 more years with me, 3 more years with Sissy, 10 more years with Jana.

So I close with what I’ve had posted on my facebook over this last year…

I never ran to try to beat your time

I ran because I tried to buy my mom more time

I ran so that I could help find a cure

I ran so that I could help my mom pay for that cure

It didn’t work out the way I had planned

Now I run so that you don’t have to go

through what my mom and I did.

See, the thing is that I first thought I was running for a cure for my Momma.

I had no idea that Team in Training would be a part of MY cure.

 

Thank you

 

Chasing pavements

Posted in Uncategorized with tags , , , , , , , , , , , on November 18, 2013 by runmyssierun

Chasing pavements

I have this crazy dream. I look forward to sleeping every night because it is then, when I dream, when I close my eyes… I see it and it feels so real.

I will keep chasing it.

I run after it.
I will find my dream and keep on running until it comes true.

I will. We will. See you there. 🙂

Give Back with LLS on #GivingTuesday!

Posted in Uncategorized with tags , , , , , , , , , , on November 15, 2013 by runmyssierun

http://pages.teamintraining.org/sctx/txtri14/mcardenasb

LLSGreaterBay's avatarLLS: Truly Relentless

Mark your calendars for #GivingTuesday on December 3, 2013! This year, we’re forgoing Black Friday and Cyber Monday and putting our time and money towards giving back. We’re proud to share that The Leukemia & Lymphoma Society (LLS) is an official partner of #GivingTuesday and we will be hosting a live online event on December 3rd through our national social media pages.

Learn more about LLS’s partnership with #GivingTuesday and find out how you can give back here: http://givingtuesday.org/partner/the-leukemia-lymphoma-society/.

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Whether you give to LLS or any other non-profit organization, join us in giving back on Tuesday, December 3, 2013. Gather your friends, family, co-workers, peers and more and be a part of a national celebration of generosity on #GivingTuesday!

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It’s easier to run

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , on November 5, 2013 by runmyssierun

People do things for other people that they wouldn’t ordinarily do for themselves,” Pamela Anderson (the well known actress who played the sexy lifeguard on the TV show Baywatch) told the press when she started training for the ING NY Marathon. She completed the marathon in 5 hours and 41 minutes.

Pamela Anderson during and after the 2013 New York City Marathon on Sunday, Nov. 3, 2013. (Left: Seth Wenig / Associated Press; right: Pamela Anderson / Twitter)

Pamela Anderson during and after the 2013 New York City Marathon on Sunday, Nov. 3, 2013. (Left: Seth Wenig / Associated Press; right: Pamela Anderson / Twitter)

This is exactly the behavior that convinces me that there is more good in the human race than bad. Sure there are a few people out there that are in it all just for themselves and don’t care to do anything for anyone else but themselves… the world revolves around them… they’re a legend in their own mind… and that’s all fine and dandy. Those people are clearly on a journey that is destined for a grand lesson.

Less than an hour after I posted my last blog entry, I received a text on my phone from one of my blog followers that stated “Dezma’s donations complete. You inspire us to help others. Love you!!”

If you haven’t read that last entry, I talked a little bit about Dezma’s family continuing to run in her memory. They pledged to raise $100,000.00 to fund a research program for AML patients in her name. However, at the time of my posting, they were $2,000.00 short of their goal.

I am happy to announce that TEAM DEZMA reached their goal. A research grant named after Dezma Chavez will soon be underway thanks to the generosity of hundreds of donors and one very special follower of this little blog.

TEAM DEZMA will be running together at the San Antonio Rock & Roll Marathon next weekend. Keep them in your prayers.

Over the last year or so, I’ve had a few people criticize me/my actions/my motives saying that I talk too much about myself, brag too much about all my achievements and that I am desperate for attention. I feel so redeemed now. The above paragraphs validate me, my actions and my motives. It’s not about ME. I think sometimes some of the people who read this enter my blog with ill-intent from the get go. They see a before and after photo and feel inadequate or they see the large number of “likes” on a Facebook post and question their own likability and want desperately to pull me down into the crab bucket.  This kind of behavior does us no good. It’s destructive. Don’t compare yourself to the events I’m doing or what I look like. Focus on making yourself better than you were yesterday and on making the world a better place.

Had I not mentioned in my blog the $2k that Team Dezma needed… had I not had so many incredible generous donors following me…

“Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure. It is our light, not our darkness that most frightens us. We ask ourselves, Who am I to be brilliant, gorgeous, talented, fabulous? Actually, who are you not to be? You are a child of God. Your playing small does not serve the world. There is nothing enlightened about shrinking so that other people won’t feel insecure around you. We are all meant to shine, as children do. We were born to make manifest the glory of God that is within us. It’s not just in some of us; it’s in everyone. And as we let our own light shine, we unconsciously give other people permission to do the same. As we are liberated from our own fear, our presence automatically liberates others.” ~ Marianne Williamson

Just because you post a lot does not mean that you are not humble.  I post to share a story, to inform, to inspire and to instigate a positive response. I want to grab the world by it’s shoulders and shake some sense into it! Stop turning a blind eye to the problem. Wake up and do something for yourself and for the rest of the world.

I went to celebrate the Cyclepaths recently on their successful journey to Ironman. Their story is incredible! A true testament to what can be done with sheer dedication and “iron will”. While I was there, I was taken aback by a few comments made to me that night. (I won’t post all of the shocking comments and I understand that a few people probably had too much to drink that night – still no excuse in my book)

“I read your blog but there was no mention of me in it so I stopped reading it.”

Hmmmmm

I didn’t respond to that person. In fact, I pretended not to hear her and simply turned around and walked away. Oh but remember that brutally mean and sarcastic girl inside my head that yells at me all the time during races? Ya, she had a lot to say. Thankfully, the rest of the world can’t hear the sarcasm in my head.

So, on that note, let me be clear about this little blog.

It’s not about you. It’s not even about me.

This is about a promise that I made to my family members that were stolen from me by cancer and my journey to fulfill that promise.  Along my journey I meet a myriad of people on similar paths. I open myself and my heart in every vulnerable way to them and absorb the determination, lessons and love that they share with me in hopes that together we will find a way to heal from our losses and prevent other losses from happening as a result of cancer.  I find solace and healing with these people and these activities. Together we ignite happiness in each other’s lives again.

Sissy chose for me to run as part of this journey.  Running quickly evolved into Triathlons and Cycling and a completely new active and healthy lifestyle for me (I have a feeling this was all part of Sissy’s master plan). Defeating/preventing cancer and helping caregivers while loved ones endure the wrath of cancer is the other component of my journey. I post about (1) running, (2) triathlons, (3) cycling and (4) cancer and every emotion and physical trial that attaches itself to these. If you’re here to read about my children, my relationship, my work or what’s going on with my friends… good luck. It’s not gonna happen unless they are directly tied to the 4 subjects stated here.

I close today’s post with a reminder of why I do what I do: the speech that I gave at Team in Training’s “Mission Moment”

I lost my best friend to Non-Hodgkin Lymphoma just a few months before he was to walk with me down the isle at my wedding. His name was Rodney Perez. He bravely battled cancer for 5 years. He died at age 24.

I lost my grandmother, Lorenza “Lencha” Cavazos and grandfather, Narciso Cavazos to Leukemia.

I lost my baby brother, Donny Cardenas, not from cancer but from what cancer does to loved ones and caregivers… what no one talks about, the stress that the family deals with while caring for their loved ones like financial stress and emotional stress. He felt he had to take on this burden by himself. He dealt by eating all the wrong things, drinking, locking himself up from the world. He had a heart attack at age 38.

I lost my Aunt Sissy – the woman who raised me while mom worked and went back to school. Leukemia stole her from us and her three years of retirement that she worked all her life for.

I lost my beautiful close friend Jana Miller. A brilliant doctor, fun loving and kind hearted… many you were in Junior League with her. She was diagnosed at stage IV during her 3rd year of med school. She finished, practiced and became an active member of the community. Few people knew she lived ten years with cancer. Her smile fooled everyone.

I lost my Momma. On Easter of this last year. Exactly one year after we lost my baby brother Donny. Eight months after losing her sister Sissy.

I’m sorry. I still can’t talk about my Momma.

I joined Team in Training because I thought that if the world and God saw how hard I was trying to do this impossible run… then maybe, just maybe, the world and God would make the impossible cure possible.

And when I ran my first full marathon in San Diego, just a couple of months after my Momma died, a woman yelled at me – when I wanted to quit – I was at mile 22 – she said “You are running for the treatment that has kept me alive! Please, don’t stop!”

Thats when I understood that hundreds, thousands of strangers for years before this had run for the treatment that allowed my mother to spend 6 more years with me, 3 more years with Sissy, 10 more years with Jana.

So I close with what I’ve had posted on my facebook over this last year…

I never ran to try to beat your time
I ran because I tried to buy my mom more time
I ran so that I could help find a cure
I ran so that I could help my mom pay for that cure
It didn’t work out the way I had planned
Now I run so that you don’t have to go
through what my mom and I did.

See, the thing is that I first thought I was running for a cure for my Momma.
I had no idea that Team in Training would be a part of MY cure.