Archive for leukemia

Sole Survivor

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , on January 25, 2014 by runmyssierun

I spent Wednesday afternoon and Thursday morning with over 200 young ladies at a nearby local high school. The organizer had called me up after receiving some recommendations from the other speakers she had lined up that week as well. The week long seminar was designed to empower these young female students with leadership and life skills by providing a personal testimony of our own examples and an inspiring speech. Honestly, I was floored.

Me? Wow!

The topics divided up into the various days were: education and awareness, physical and mental fitness, health and beauty

I had a blast. Of course, I got choked up when I spoke to the girls about a few parts but made sure to emphasize the silver lining of it all… after all, it was supposed to be an inspiring talk – not a sob story and not a braggart story – but a story that told them that there will be times in your life when you’ll be knocked down to rock bottom and you’ll have to find the courage within yourself to get yourself back up. It’s a story about hope, determination, love, stewardship, sacrifice and faith. And when someone say’s that you can’t do something, turn around and tell them “watch me”.

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I was a little —- no—- I was really very very very nervous in the beginning. I feel so much more comfortable typing my feelings and experiences on a computer rather that talking about them under a spotlight in front of a couple hundred strangers staring at me. But I needed to say it out loud. To them. For me.

I cried. I warned them about my crying even before I started so I guess I was covered on that but I cried a lot. There was one time that I had to stop, wipe my tears and take a few deep breaths… I’m sure the silence was awkward for them. And I managed to  struggle through with two ovations to boot!

My story was unique in that it touched each one of the topics over the several days. My story was NOT unique in that EVERY speaker began the same way and ended the same way and each of us stressed to the girls that no matter what adversity life gives you, keep going after your dream.

“The question is not Who’s going to let me. It is Who is going to STOP ME!”

There was a defining point in my speech where all their eyes were fixated on me. Come to think of it… It was quite the defining point in my life as well.

It wasn’t planned that way, at least no one told me about it if it was, but each speaker began their speech with “I am no different from you. I am not any more special than you.” We were all from this community. We were all from humble upbringings. We all had similar values – family, education, God, health, community. We had all been given opportunities at one point or another and it took sacrifice to receive those opportunities. We had all had a visit and tour around rock bottom. We all lived to tell the tale. And we all did pretty good for ourselves.

Sound familiar? Maybe a little like you?

Good!

I know my story has a lot of death in it. I try very hard to let people know about the experience of death, witnessing it, dealing with it and doing all you can to move forward through it in a healthy way without making it sound like I’m dwelling on it.  Yes, it has been very very difficult but I also had to remember that I have two boys that still need me healthy, happy and alive for them. So when people connect to my story, I know deep inside that they have a rock bottom experience as well. That’s when I turn it on.

One girl raised her hand to ask a question but immediately got incredibly timid when I asked her to repeat it because I couldn’t hear her. She repeated it again but even softer and then shook her head and said “nevermind”.

I knew immediately… this was an important question. So, I didn’t back down. I stayed there until she said the question aloud again for everyone to hear. It was important for everyone to hear this. No question was silly, stupid or unworthy… especially this one.

“After all you went through, did you go to therapy?”

My reply was:

“Yes, I went to therapy. I still go to therapy. Running has become my therapy. There are some days when I train in groups for events. And there are some days when I run by myself for this very reason. I need to be alone with my thoughts, with myself and I pray when I run. It’s ok to feel sad sometimes. But we HAVE to find it within ourselves to get ourselves out of it and find happiness again.”  I wish you could have seen their faces when I told them it was ok to feel sad sometimes. It was as if I had given them permission to be normal.

It’s been proven that physical exercise helps us cope and reduce our stress levels.  Clearly I could have gone the other way and fallen quickly into the rabbit hole of depression. But I didn’t. Running saved me. Team in Training saved me.

I am a sole survivor.

I just spoke to the most amazing group of young women and my heart melted when a swarm of them caught me as I was leaving. They each asked me to take individual photos with them and spoke to me about their own experiences with cancer and their own "impossible goals" that they want to achieve. Honored and humbled and a smile from ear to ear!!!

I just spoke to the most amazing group of young women and my heart melted when a swarm of them caught me as I was leaving. They each asked me to take individual photos with them and spoke to me about their own experiences with cancer and their own “impossible goals” that they want to achieve. Honored and humbled and a smile from ear to ear!!!

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I lost my best friend to Non-Hodgkin Lymphoma just a few months before he was to walk with me down the isle at my wedding. His name was Rodney Perez. He bravely battled cancer for 5 years. He died at age 24.

I lost my grandmother, Lorenza “Lencha” Cavazos and grandfather, Narciso Cavazos to Leukemia.

I lost my baby brother, Donny Cardenas, not from cancer but from what cancer does to loved ones and caregivers… what no one talks about, the stress that the family deals with while caring for their loved ones like financial stress and emotional stress. He felt he had to take on this burden by himself. He dealt by eating all the wrong things, drinking, locking himself up from the world. He had a heart attack at age 38.

I lost my Aunt Sissy – the woman who raised me while mom worked and went back to school. Leukemia stole her from us and her three years of retirement that she worked all her life for.

I lost my beautiful close friend Jana Miller. A brilliant doctor, fun loving and kind hearted. She was diagnosed at stage IV during her 3rd year of med school. She finished, practiced and became an active member of the community. Few people knew she lived ten years with cancer. Her smile fooled everyone.

I lost my Momma. On Easter of this last year. Exactly one year after we lost my baby brother Donny. Eight months after losing her sister Sissy.

I’m sorry. I still can’t talk about my Momma.

I joined Team in Training because I thought that if the world and God saw how hard I was trying to do this impossible run… then maybe, just maybe, the world and God would make the impossible cure possible.

And when I ran my first full marathon in San Diego, just a couple of months after my Momma died, a woman yelled at me – when I wanted to quit – I was at mile 22 – she said “You are running for the treatment that has kept me alive! Please, don’t stop!”

Thats when I understood that hundreds, thousands of strangers for years before this had run for the treatment that allowed my mother to spend 6 more years with me, 3 more years with Sissy, 10 more years with Jana.

So I close with what I’ve had posted on my facebook over this last year…

I never ran to try to beat your time

I ran because I tried to buy my mom more time

I ran so that I could help find a cure

I ran so that I could help my mom pay for that cure

It didn’t work out the way I had planned

Now I run so that you don’t have to go

through what my mom and I did.

See, the thing is that I first thought I was running for a cure for my Momma.

I had no idea that Team in Training would be a part of MY cure.

 

Thank you

 

Philadelphia and my Sissy

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , on November 19, 2013 by runmyssierun

One week before I attempted the Capital of Texas Triathlon, an article was publicized by the Leukemia and Lymphoma Society. It brought both joy and heartbreak to me as I read the summary.

Sissy – my Aunt who started me on this running journey – had the Philadelphia Strain that the article speaks about.

I had to take a moment to step back and not be angry at time. I had to… I HAD TO see the silver lining, the hope, the advances that one single year makes in science and medicine. I could not allow myself to keep that dreaded wretched question in my head… you know it.

If only she had had more time… if only.

This was our family photo that was used in our Church directory. Sissy is standing on the right. I'm beside her in yellow. Momma and I wore matching suits.

This was our family photo that was used in our Church directory. Sissy is standing on the right. I’m beside her in yellow. Momma and I wore matching suits.

One line stood out to me as I read it over and over again:

the first-ever successful treatment of a lethal cancer at the genetic level

I may not be intelligent enough to discover a cure. I may not be rich enough to pay for a laboratory free of politics and filled with unlimited visionaries to identify the cause and produce a cure. I may not be influential enough to make the world change. I may not be fast enough to garner the attention of big media or corporate sports sponsors to fund this crazy journey. I may not ever win this battle that took the ones I loved.

But what I do know is that for as long as I can, I won’t ever stop. Because someone who gets diagnosed THIS year has more hope and advantages than my Momma and Sissy did just a couple of years ago.  And that’s the only way that I can make a difference.  I must continue to fundraise, speak loudly, swim, bike and run for that stranger who needs us.

I will return to the Capital of Texas Triathlon in May of 2014. I will likely not be on the podium AGAIN… but my hope is that someone out there will live cancer free as a result.

http://www.lls.org/#/resourcecenter/suggestedreading/adultpatientcaregivers/diseasespecificreferencebooks/ThePhiladelphiaChromosome

Give Back with LLS on #GivingTuesday!

Posted in Uncategorized with tags , , , , , , , , , , on November 15, 2013 by runmyssierun

http://pages.teamintraining.org/sctx/txtri14/mcardenasb

LLSGreaterBay's avatarLLS: Truly Relentless

Mark your calendars for #GivingTuesday on December 3, 2013! This year, we’re forgoing Black Friday and Cyber Monday and putting our time and money towards giving back. We’re proud to share that The Leukemia & Lymphoma Society (LLS) is an official partner of #GivingTuesday and we will be hosting a live online event on December 3rd through our national social media pages.

Learn more about LLS’s partnership with #GivingTuesday and find out how you can give back here: http://givingtuesday.org/partner/the-leukemia-lymphoma-society/.

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Whether you give to LLS or any other non-profit organization, join us in giving back on Tuesday, December 3, 2013. Gather your friends, family, co-workers, peers and more and be a part of a national celebration of generosity on #GivingTuesday!

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Millionaire Winner

Posted in Uncategorized with tags , , , , , , , , , , on November 15, 2013 by runmyssierun

“Nashville” Star Charles Esten Plays “Who Wants To Be A Millionaire” with a Mission in Mind

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NEW YORK (November 14, 2013) – Actor Charles Esten, who portrays Deacon Claybourne on the hit ABC series “Nashville,” will appear as a contestant on “Who Wants To Be A Millionaire” with new host Cedric “The Entertainer” in episodes airingWednesday, November 20 and Thursday, November 21, and will donate his winnings to The Leukemia & Lymphoma Society (LLS). Esten makes “Millionaire” history by becoming the first celebrity contestant ever to make it all the way to the $1 million question on the daytime version of the show! Will he go for it? Tune in November 20 and 21 to find out!

Esten will donate all of his winnings to LLS, the world’s largest voluntary health organization dedicated to funding cures and ensuring access to treatments for blood cancer patients. Esten’s 13-year-old daughter, Addie, was diagnosed with leukemia at age 2 1/2 and, thanks to advances in treatment, is thriving today. Because of their personal connection to blood cancer, Chip, his wife Patty, and the entire Esten clan are strong supporters of LLS.

“It was a dark and scary day when we found out that our Addie had leukemia. The first ray of light was the reassurance from our doctor that there was hope – there were medicines and procedures that could help our little girl. All that hope, and all that help, came from research?research made possible with funds raised by LLS and other organizations. That’s why we’re so thankful and committed to LLS. I’m excited that a fun experience on ?Millionaire? can be used to raise money and recognize the serious work of LLS, which is making a positive difference for blood cancer patients and their families.”

“We have one goal:  A world without blood cancers,” states LLS President & CEO John Walter.  “To date, we have invested nearly $1 billion in research to advance therapies and save lives. We are so grateful to Chip Esten and his family for their support to show that we are helping to save lives not someday, but today.”

“Millionaire” airs weekdays in national syndication.  Check local listings or go tohttp://www.millionairetv.com for time and channel.

Click here to view photo of Esten on “Millionaire” set.

About “Who Wants To Be A Millionaire”
As America?s richest game show, “Who Wants To Be A Millionaire” continues to be the only game show to offer a $1 million prize to each and every contestant. Since “Millionaire” debuted in syndication in 2002, contestants have won over $80 million! “Millionaire” is produced by Valleycrest Productions Ltd. and is distributed by Disney-ABC Domestic Television. Rich Sirop is the executive producer. “Millionaire” is taped at Metropolis Studios (106 & Park) in New York City.

About The Leukemia & Lymphoma Society
The mission of The Leukemia & Lymphoma Society (LLS) is to cure leukemia, lymphoma, multiple myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world, provides free information and support services, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care.

Founded in 1949 and headquartered in White Plains, NY, LLS has chapters throughout the United States and Canada. To learn more, visit www.lls.org. Patients should contact the Information Resource Center at (800) 955-4572, Monday through Friday, 9 a.m. to 6 p.m. ET.

Dia de los Muertos – All Souls Day

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , on November 2, 2013 by runmyssierun

Today was a beautiful day to run. The cool front came in and it was 66-71 degrees with 17 mile per hour winds.  I joined up with the gang from Team in Training. They were getting ready for next week’s Rock & Roll Marathon in San Antonio and were scaling back their milage which made it perfect for me to scale UP for mine in a safe group that I felt comfortable with.

I was a little startled when my Garmin voice announced that my average time was in the  9 minute mark after all the time I had spent this summer on the bike and training for the triathlon. While it was all good training and great workouts… marathon training requires consistent and incremental long distance endurance training. Three miles here and six miles there wasn’t going to cut it for me if I want to do the full marathon soon.

What surprised me even more was that prior to mile two, I had already found my stride and was keeping it. I wasn’t breathing heavy and the cool weather made it all so much better. Was it my conditioning that made the difference today? Maybe… but I think I’m gonna chalk it up to some phenomenal inspiration and the meaning of a day.

This last week, I took a real good look around at the people who have trained with me for the last one or two years and all that they have accomplished.

Me and Lindslee running in for the finish at Resolution Run

Lindslee and I at the Resolution Run

On December 30, I ran the Resolution 5k Run with Lindslee. She was so worried about running. I could tell she was really intimidated by it but I also knew she was a natural athlete. She has a gift.  Lindslee kept that resolution. This morning, she ran 11 miles. Next week, she’ll be racing at the San Antonio Rock & Roll Marathon. She never gave up.

About a year ago, the Cyclepaths came up with the crazy idea of completing a half Ironman. The only problem was that a few of them didn’t know how to swim. On January 14th of this year, Esmeralda Chavez, (I call her Coach Chavez or Chavita) and I jumped into the Nikki Rowe High School pool and taught ourselves how to swim. Now, I have a son who has been a competitive swimmer since the age of six who helped me a lot. I had an advantage. Chavez… Chavez was so scared of the water that she would NOT go to the deep end of the pool (which was at about the half way mark of the length of the pool). So when we did “laps”, she’d stop in the middle and turn around.

Dedication and the desire of making a dream come true was what drove this woman. She just completed the half Ironman last weekend. Can you imagine?? Going from swimming half the length of a pool to a half Ironman in this short amount of time?!?!? She never gave up.

Chavez at the Ironman finish line

Read about her amazing story here: http://progresstimes.net/sports/5153-la-joya-teacher-completes-half-ironman.html

Also about a year ago, I met the most incredible vivacious beautiful little girl. For being just 11 years old, she had the most amazing maturity and zest for life.

550828_10152253154875068_1812450883_n dezma

Dezma surprised my Team (Team in Training) the morning of the Nike Women’s Marathon in San Francisco and cheered us on. She taught me a lot for the very short time I knew her. In a way, I feel like a member of her family now. It’s an odd bond of understanding and love and support. Dezma lost her life to cancer but her family never gave up. Five months ago, they created TEAM DEZMA. They pledged to fundraise $100,000 in her memory. Five months.. One Hundred Thousand Dollars!!! They never gave up.  They are TWO THOUSAND DOLLARS SHORT!!!

http://pages.teamintraining.org/txg/rnrsa13/TeamDezma7ke

Click on the link above to be a part of the TEAM DEZMA’S CURE.

So when the morning sun rose today along the horizon of the 2nd Street Hike & Bike Trail, I remembered Dezma. It is a special day afterall. It is the Dia de los Muertos (translated literally it means “Day of the Dead) also known as All Souls Day. I felt like I could run forever in that sunshine on that trail. I had angels with me. It was their day. It was a day to remember them, pray for them, honor them. And as always… the sky went from the starry black to blue and then yes, orange.

Momma. I’ll never ever give up.

Anything is possible so long as you don’t give up.

Something for the pain

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , , on October 15, 2013 by runmyssierun

I am aware of pain. I feel it. I just won’t talk endlessly about it nor will I go around showing everyone my boo-boo or tell them “it hurts when I do this”. I simply won’t do “this” because it hurts.

I do listen to my body and know the difference between muscle fatigue and muscle damage. After a few harsh extreme endurance physical events, my body is bound to feel one of the two.

I went for a second opinion (yes, other than my own). Sometimes, I admit it, I don’t know everything.

The doc’s opinion… I’ve got a pain in my neck.

Spine works in McAllen…. That was pretty cool. They hooked up this thingamajig to my spine and it calculated all the problems and intensity of the problems on my back.

Way cool!

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Anyway

Posted in Uncategorized with tags , , , , , , , , , , , , on August 5, 2013 by runmyssierun

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What I would give for a normal average week. Seven days with no highs and no lows. No drama…. ahhhhh wouldn’t that be nice. Just peace and quiet and no worries.

Earlier, a few posts back, I spoke about the possibility of having leukemia because of the symptoms that I had. I am elated to report that I do NOT have leukemia!!!

It is true. I have faith that God will not give you more than you can handle. And while I have learned that I am stronger than I originally thought, I know deep in my heart that having to deal with leukemia would have been too much for my father to handle. He lost his wife, his son, his sister in law… and he hasn’t seen or been able to speak to his grandsons in almost a year.  God would not do this to him.  Maybe to me, but certainly not to him.

The news came to me on Friday afternoon. That made the earlier part of the week pretty chaotic for me. While I was scared and worried about the unknown future, it did make me very very VERY grateful for my present. The number of notes and texts of encouragement were overwhelming. *I apologize for not being able to respond to each of them. My time on the internet and phone is becoming more and more limited. 

What I have noticed – extremely evident – this week was that with every compliment, every achievement, every well wish came a comment or hurtful action from a couple of people close to me. I was hurt, betrayed and blindsided. 

No good deed goes unpunished. But I’ll do it anyway.

My usual suspects that I’ve leaned on over the years are no longer close by and too far for me to cry on their shoulders. It sucks growing up let me tell you. Tired of crying and worrying all night every night, I’m glad I was smart and strong enough to put it all in God’s hands, finally.

On a lighter note….

Training seems to be taking shape. I completed the 60-mile McAllen Crime Stoppers ride this weekend. I was able to incorporate the speed intervals I missed out on Thursday in the first half of the ride. There is one road, Jarachinas Road, notorious for the rolling hills that most Valley cyclists are unprepared to conquer because of our vast flat lands, that I was looking forward to. The last two weeks I had prepped my legs for the big ring on this road. I did it. I did the whole stretch on the hardest gear. My legs burned like crazy but I had to prove to myself that I could do it. While I fell back in time and lost my place in the pack, my purpose for participating in this race was to have a safe ride on this road with a sag vehicle and water/safety stops and build up my legs for the upward climb at Viva Bike Vegas. 

After tearing my legs apart on that road, I took it down to a foundation pace and found company with the women of RGV cycling and Sebastian, the son of a phenomenal woman who encouraged me to continue running when I wanted to quit. during the ride, he bent over and grabbed a sunflower, stuck it in the back pocket of his jersey and rode up by me and said “Erica is watching over us.”

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Vampires without answers

Posted in Uncategorized with tags , , , , on July 29, 2013 by runmyssierun

Today made me ask more questions… Still no answers.

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14 bruises

Posted in Uncategorized with tags , , , , , , , , , , , , , , , , , , , , , , on July 18, 2013 by runmyssierun

What a week! This morning I missed my early 5 a.m. wake up bike ride and did some one handed bike drills and speed intervals with Coach Sandy and some of the Multi-sport Maniacs. I don’t want it to seem like bragging so I feel the need to say this up front now… I really am very surprised that my legs are not hurting and sore as how I would imagine they would be. Coach Sandy really does know what she’s doing. She’s making me stronger!!!

This morning was really awesome with Coach!!  She took us along a stretch of road that was laced with sugar cane fields. There isn’t a lot of traffic so it’s safe for us to practice drills and high speed intervals in flat straight lines. The best part was that she came up to me and recognized that I was improving. Albeit, I still have a long ways to go… but I’m improving!!!

The whispers of the sugar cane silenced my worries. There have been a lot this week. The sound they make is amazing. If you ever have the chance to run or bike by a sugar cane field on a windy day, I promise you, you’ll feel the magic. I needed to feel that.

sugar cane

About three weeks ago, I fell while on a bike ride. It wasn’t a huge smash boom crash. It was one of those slow motion I’m-falling-and-can-order-a-triple-latte-and-still-have-20-seconds-left kinda falls. I was able to buffer my fall with my arm and caught myself with a giggle. No biggie. But my ego got hurt.

The following day, I noticed a bruise on my butt and some tenderness around… well you know… down there. I saw them but casually blew them off. I mean… come on. They’re bruises. That’s all. I rode the Hell of the South a few days later so clearly they weren’t bad enough to stop me.

But they were enough to make a friend of mine tell me that they were not normal for that kind of fall. She is in the medical field and I have to admit… she made a good point.  I believe I can properly quote her with “OH MY GOD! Those aren’t bruises! They’re Hematomas!”

I now have bruises all over my body for no explainable reason. Fourteen of them!

Now, I debated on whether or not to make this little trial of mine public on this blog. After watching Robin Roberts last night accept her award at the ESPYs, I knew I had to. Whether or not this is life changing, it becomes responsibility when you know better to educate those around you.

So here goes…

I went to the doctor and got my blood checked. I have symptoms that could possibly identify leukemia. Bruising, fevers, night sweats, increased white blood cell counts, weight loss, tiredness, tingling and numbness… and other symptoms. In the back of my mind, I have answers and reasons for each of those symptoms. I’m a clutz. I fall off my bike. That’s why I bruise. I exercise a lot, that’s why I’ve lost weight and am tired. etc etc…

But after all that my family has been through, wouldn’t it be really stupid if I did get leukemia, saw all the signs and then ignored them because I was scared?

The smart thing would be to address the issues with my doctors and medical team.

My doctor did find some problems in my blood. I have been referred to a very good doctor at Texas Oncology. Please keep me in your prayers these next two weeks. Deep down inside, I do not believe that I have cancer. However, ignorance is NOT bliss. If I do have it, I hope to identify it in the early stage and fight it with everything I’ve got. If I don’t have cancer, I hope that someone out there who may have similar symptoms sees this and has the courage to address it properly, too.

Sarah

Posted in Uncategorized with tags , , , , , , , , , , on May 3, 2013 by runmyssierun

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